There is limited empirical knowledge about how older adults living with dementia enact their social citizenship through out-of-home participation. This study aimed: (a) to investigate out-of-home participation among older adults with and without dementia in four countries and (b) to compare aspects of stability or change in out-of-home participation. Using a cross-sectional design, older adults with mild-to-moderate dementia and without dementia, aged 55 years and over, were interviewed using the Participation in ACTivities and Places OUTside the Home questionnaire in Canada ( = 58), Sweden ( = 69), Switzerland ( = 70), and the United Kingdom ( = 128).
View Article and Find Full Text PDFCitizenship has provided an important conceptual framework in dementia research and practice over the past fifteen years. To date, there has been no attempt to synthesize the multiple perspectives that have arisen in this literature. The purpose of this paper is to explore, reflect on, and contrast, the key concepts and trends in the citizenship discourse as it relates to people with dementia.
View Article and Find Full Text PDFSince the onset of the COVID-19 pandemic, community-dwelling people living with dementia and their family caregivers have experienced many challenges. The unanticipated consequences of public health measures have impacted these families in a myriad of ways. In this interpretive policy analysis, which used a longitudinal, qualitative methodology, we purposively recruited 12 families in British Columbia, Canada, to explore the impacts of pandemic public health measures over time.
View Article and Find Full Text PDFSocial participation in out-of-home activities is important for people living with dementia, yet little is known about such participation. The aim of this study was to explore and compare out-of-home participation among people living with dementia in four countries by assessing different types of places of participation visited or no longer visited. A cross-sectional design was used to gather self-reported experiences concerning out-of-home participation among people with mild stage dementia living in Canada ( = 29), Sweden ( = 35), Switzerland ( = 35) and the UK ( = 64).
View Article and Find Full Text PDFBackground: Canada's national parks are world-renowned. However, despite recent attempts to improve access, many are not accessible to people with disabilities. With the advent of provincial and federal legislation, standards are being developed to assist with the design and management of parks.
View Article and Find Full Text PDFThis article compares and contrasts the characteristics of 3 models of housing and services for older adults, cohousing, Naturally Occurring Retirement Community Supportive Services Program, and villages, and links them to the domains of the age-friendly communities (AFCs) framework, specifically (a) services, supports, and information; (b) respect, inclusion, and diversity; (c) social and civic participation; and (d) affordability. We discuss key barriers and challenges of these models with respect to the AFC domains, as well as implementation and sustainability. Consideration of these models in age-friendly housing policy and practice could help expand and diversify the choices in the housing and services continuum.
View Article and Find Full Text PDFIn its first national strategy on dementia, the Government of Canada has highlighted the need to improve quality of care for individuals living with dementia, with emphasis on following best practices and evidence in care delivery and providing care staff access to education and training. It is also known that the design of the physical environment of care homes is integral to the care experience of individuals living with dementia. Therefore, this study aims to identify the best national and international practices implemented in care homes for people living with dementia in: (1) education, training, staffing, and care practices; and (2) environmental design and physical infrastructure, through the review of relevant grey literature.
View Article and Find Full Text PDFAvailability of community-based destinations and amenities can facilitate healthy aging by supporting older adults' functional abilities and enabling their participation in society, especially for those experiencing declining cognitive abilities. This study used a survey tool called participation in ACTivities and places OUTside the Home for older adults, specifically designed to examine the out-of-home participation of older adults living with or without dementia, to collect data on specific places and activities that individuals participate in over time. Thirty cognitively intact participants and 29 participants living with dementia were recruited.
View Article and Find Full Text PDFThis study uses the photovoice method to explore how persons living with mild-to-moderate dementia perceive neighborhood landmarks and identify characteristics that render these landmarks salient for outdoor navigation. Previous research has highlighted the role of well-designed, stable geographical landmarks in improving the navigability of neighborhoods for persons living with dementia. However, the specific attributes that render landmarks salient have not yet been sufficiently explored, resulting in inadequate evidence-based environmental design guidelines for dementia-friendly communities.
View Article and Find Full Text PDFIn recent years, persons living with dementia have started advocating to have a more active role in shaping policies and interventions that impact their quality of life. In order to meaningfully involve and engage persons living with dementia in decision-making processes, community partners, providers, planners, as well as researchers and healthcare practitioners need to have a better understanding of their experience of living with dementia. Focusing on the lived experiences of dementia and advocacy enables the understanding that persons living with dementia can be agents of change with purpose and intent and helps us think beyond common stereotypes associated with dementia.
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