Research Registries: A Tool to Advance Understanding of Rare Neuro-Ophthalmic Diseases.

Background: Medical research registries (MRR) are organized systems used to collect, store, and analyze patient information. They are important tools for medical research with particular application to the study of rare diseases, including those seen in neuro-ophthalmic practice.

Evidence Acquisition: Evidence for this review was gathered from the writers' experiences creating a comprehensive neuro-ophthalmology registry and review of the literature.