Age-Specific Probability of 4 Major Health Outcomes in Children with Spina Bifida.

Objective: This study aimed to estimate the age-specific probability of 4 health outcomes in a large registry of individuals with spina bifida (SB).

Methods: The association between age and 4 health outcomes was examined in individuals with myelomeningocele (MMC, n = 5627) and non-myelomeningocele (NMMC, n = 1442) from the National Spina Bifida Patient Registry. Sixteen age categories were created, 1 for each year between the ages of 5 and 19 years and 1 for those aged 20 years or older.

Preventive care services and health behaviors in children with fragile X syndrome.

Background: This is the first description of preventive care services specifically received by children and young adults with fragile X syndrome (FXS). We compare these rates to those of other pediatric populations and identify care disparities within our cohort.

Objective: Describe the frequency of preventive care services and health behaviors by young people with FXS, and identify disparities in care.