Publications by authors named "Kelly Lang-Robertson"
The COVID-19 Resource Centre: an invaluable tool for primary care.
J Can Health Libr Assoc
August 2024
Background: In response to the COVID-19 pandemic, the Ontario-based Centre for Effective Practice (CEP) established the COVID-19 Resource Centre (CRC) in March 2020. This platform rapidly became a critical source of clinical and practice guidance for primary care providers, highlighting the importance of effective information synthesis during public health emergencies.
Description: The article discusses the development of the CRC, emphasizing the application of librarianship principles in navigating the challenges posed by the pandemic's information overload and the scarcity of evidence.
Background: Clinical practice guidelines (CPGs) synthesize high-quality information to support evidence-based clinical practice. In primary care, numerous CPGs must be integrated to address the needs of patients with multiple risks and conditions. The BETTER program aims to improve prevention and screening for cancer and chronic disease in primary care by synthesizing CPGs into integrated, actionable recommendations.
View Article and Find Full Text PDFArticle Synopsis
- Pyruvate kinase deficiency is a common cause of chronic congenital non-spherocytic hemolytic anemia, affecting about 1 in 100,000 to 1 in 300,000 people, leading to serious health issues.
- The International Guidelines for the Diagnosis and Management of Pyruvate Kinase Deficiency were created to provide evidence-based recommendations for treating patients, developed by a global panel of 29 experts across multiple specialties.
- The guidelines cover five key areas, including diagnosis, management of complications, anemia treatment, advanced therapies, and special populations, with a total of 31 recommendations aimed at improving patient care.
Description: Hereditary hemorrhagic telangiectasia (HHT) is an autosomal dominant disease with an estimated prevalence of 1 in 5000 that is characterized by the presence of vascular malformations (VMs). These result in chronic bleeding, acute hemorrhage, and complications from shunting through VMs. The goal of the Second International HHT Guidelines process was to develop evidence-based consensus guidelines for the management and prevention of HHT-related symptoms and complications.
View Article and Find Full Text PDFThe International/Canadian Hereditary Angioedema Guideline.
Allergy Asthma Clin Immunol
November 2019
This is an update to the 2014 Canadian Hereditary Angioedema Guideline with an expanded scope to include the management of hereditary angioedema (HAE) patients worldwide. It is a collaboration of Canadian and international HAE experts and patient groups led by the Canadian Hereditary Angioedema Network. The objective of this guideline is to provide evidence-based recommendations, using the GRADE system, for the management of patients with HAE.
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- - The objective of the project was to create and encourage the use of clinical practice guidelines (CPGs) for smoking cessation in Canada by adapting existing high-quality guidelines using the ADAPTE framework and engaging stakeholders.
- - An expert body reviewed six existing CPGs, graded their recommendations, and formed a network of over 800 diverse stakeholders (clinicians, researchers, decision-makers) for collaborative input on the guidelines.
- - The final guidelines included 24 summary statements and were endorsed by various government and non-government organizations, demonstrating a successful model that could be replicated in other areas to enhance smoking cessation efforts.
Hereditary angioedema (HAE) is a disease which is associated with random and often unpredictable attacks of painful swelling typically affecting the extremities, bowel mucosa, genitals, face and upper airway. Attacks are associated with significant functional impairment, decreased Health Related Quality of Life, and mortality in the case of laryngeal attacks. Caring for patients with HAE can be challenging due to the complexity of this disease.
View Article and Find Full Text PDFBackground: The aim of the Building on Existing Tools to Improve Chronic Disease Prevention and Screening in Family Practice (BETTER) randomized controlled trial is to improve the primary prevention of and screening for multiple conditions (diabetes, cardiovascular disease, cancer) and some of the associated lifestyle factors (tobacco use, alcohol overuse, poor nutrition, physical inactivity). In this article, we describe how we harmonized the evidence-based clinical practice guideline recommendations and patient tools to determine the content for the BETTER trial.
Methods: We identified clinical practice guidelines and tools through a structured literature search; we included both indexed and grey literature.