Publications by authors named "Keeley McEvoy"
Article Synopsis
- The initiative aimed to engage children affected by cancer, survivors, families, and healthcare professionals to identify and prioritize research questions that could shape future studies on childhood cancer.
- An online survey gathered over 1,200 potential questions, which were then refined and shortlisted through surveys and workshops with participants, resulting in a final consensus on the Top 10 priorities.
- The most significant concern identified was the need for more effective and less burdensome treatments for children with cancer, emphasizing a focus on improving patient care and outcomes.
Background: Previous priority setting exercises have sought to involve children, but in the final reporting, it is evident that few children had been engaged through the process. A primary aim in the Children's Cancer Priority Setting Partnership was to find out from children what they want research to focus on. We report on our experience to inform methods of engagement with children in future James Lind Alliance Priority Setting Partnerships and similar exercises.
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