Publications by authors named "Kayla M Duty"

Objective: Families affected by rare diseases face many challenges finding adequate care and often report poor communication with clinicians. In the current study, we explore patient and caregiver advice for families and clinicians in the context of complex vascular malformations (VMs), a condition that is frequently misunderstood and misdiagnosed.

Methods: We performed semi-structured interviews with 21 adult patients with complex VMs and 24 caregivers of children with VMs.

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