genetic testing is available for UK Jewish individuals but the provision of information online for is unknown. We aimed to evaluate online provision of information by UK organisations (UKO), UK Jewish community organisations (JCO), and genetic testing providers (GTP). Google searches for organisations offering information were performed using relevant sets of keywords.
View Article and Find Full Text PDFBackground: 1 in 40 UK Jewish individuals carry a pathogenic variant in . Traditional testing criteria miss half of carriers, and so population genetic testing is being piloted for Jewish people in England. There has been no qualitative research into the factors influencing awareness and testing experience in this group.
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