Publications by authors named "Kathy Ainley"
Context: Heart transplantation is not curative and results in a high-morbidity chronic illness. Despite this, little research has focused on adolescents' quality of life after heart transplant. Such research is critically needed because of the complex developmental changes experienced by adolescents and the need for transition to self-management during this vulnerable period.
View Article and Find Full Text PDFContext: Very little research has focused on the long-term caregiving demands associated with parenting a child after a transplant or on the parents' perceptions of those demands.
Purpose: To describe parents' experiences parenting a school-aged child after heart transplant.
Design: Focused ethnography.
Purpose: The purpose of this focused ethnographic study was to explore the quality of life (QOL) of school-age heart-transplant recipients.
Design And Methods: Semistructured interviews were conducted with 11 parent-child dyads. Data were analyzed using content analysis and constant comparison.
Background: Although heart transplantation has been offered for 2 decades to prolong the lives of children with end-stage heart disease, we know little about how these children view their lives, how they deal with their complicated medical regimen, and how the transplantation affects their quality of life.
Objectives: To examine the quality of life of school-aged heart transplant recipients and to identify the key factors they believe affect their quality of life.
Design: Focused ethnography.