The Process of Developing a Disease Activity Index in Microscopic Colitis.

Background And Aims: Patient-reported outcome measures [PROMs] aim to measure patients' perception of how their disorder influences everyday functioning. The objective of this study was to develop a PROM to assess disease activity in microscopic colitis [MC] fulfilling the requirements of the Food and Drug Administration [FDA].

Methods: The European Microscopic Colitis Activity Index [E-MCAI] was developed in four steps.

The quality of care questionnaire: development of a valid measure for persons with inflammatory bowel disease.

Background And Aims: Quality of care is important in lifelong illnesses such as inflammatory bowel disease (IBD). Valid, reliable and short questionnaires to measure quality of care among persons with IBD are needed. The aim of this study was to develop a patient-derived questionnaire measuring quality of care in persons with IBD.

Health care as perceived by persons with inflammatory bowel disease - a focus group study.

Aims And Objectives: The aim of this study was to explore the perceptions of health care among persons living with inflammatory bowel disease.

Background: The quality of care plays an important role in the life of persons with a chronic disease. To define what persons with inflammatory bowel disease perceive as high-quality care, greater focus must be placed on the individual's own perspective of living with the condition.

What do patients need to know? Living with inflammatory bowel disease.

Aims And Objectives: To explore the need for knowledge as expressed by patients diagnosed with inflammatory bowel disease.

Background: Inflammatory bowel disease has a major impact on physical and emotional well-being, placing considerable demands on patients' management of daily activities. Although inflammatory bowel disease patients' level of knowledge about their disease has been previously studied, it is necessary to learn more about their self-expressed needs.