Publications by authors named "Karly Graham"
Objective: To survey participants with polymyalgia rheumatica (PMR) to evaluate the face validity, acceptability, and domain match of proposed candidate outcome measures.
Methods: A structured, online, anonymous survey was disseminated by patient support groups through their networks and online forums. The candidate outcome measures comprised (1) visual analog scale (VAS) and numerical rating score (NRS) to assess pain; (2) VAS, NRS, and duration to assess stiffness; (3) the modified Health Assessment Questionnaire and Health Assessment Questionnaire Disability Index to assess physical function; and (4) C-reactive protein and erythrocyte sedimentation rate to assess inflammation.
Objective: ANCA-associated vasculitis (AAV) is a rare multisystem disease. Modern therapeutic protocols have turned AAV from an acute, frequently fatal disease into a chronic disease requiring long-term immunosuppression. Patients must often manage substantial burdens related to chronic illness and treatment-related side effects, requiring help from informal carers.
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- Rheumatoid arthritis (RA) increases the risk of falls due to joint changes, which can lead to both physical injuries and psychological consequences, such as the fear of falling.
- A study involved 12 participants aged 64-85, focusing on their experiences with falls and the psychological impact, using interviews and analyses to identify key themes.
- Findings revealed that fear of falling is prevalent among both those who have and haven't fallen, indicating that while some individuals may adapt and manage risks, many feel unsupported by healthcare services, highlighting the need for targeted community interventions.
Background: To update community-based prevalence values for Polymyalgia Rheumatic (PMR) and Giant Cell Arteritis (GCA) using case record review supplemented by population survey and subsequent clinical review.
Methods: Clinical data were obtained from case records of a large primary care practice in Norfolk, UK and reviewed for diagnoses of GCA and PMR. In addition postal survey was carried out to capture potentially undiagnosed cases within the practice population.