Publications by authors named "Karis L Barker"
Background: There are increasing publications on meaningful collaboration between researchers and patient research partners (PRPs), but fewer publications of such work from the PRP perspective using an evaluation framework. Our aim is to present our own perspectives and reflections on meaningful collaboration as PRPs working on a qualitative research study.
Main Body: We were part of a study team that comprised of PRPs, clinicians and academic researchers, and was led by a PRP.
Background: Studies report various ways in which patients are involved in research design and conduct. Limited studies explore the influence of patient engagement (PE) at each research stage in qualitative research from the perspectives of all stakeholders.
Methods: We established two small research groups, a Patient Researcher-Led Group and an Academic Researcher-Led Group.
Background: There is evidence supporting the value of patient engagement (PE) in research to patients and researchers. However, there is little research evidence on the influence of PE throughout the entire research process as well as the outcomes of research engagement. The purpose of our study is to add to this evidence.
View Article and Find Full Text PDFObjective: The objective of this study was to explore the outcomes of research engagement (patient engagement, PE) in the context of qualitative research.
Design: We observed engagement in two groups comprised of patients, clinicians and researchers tasked with conducting a qualitative preference exploration project in inflammatory bowel disease. One group was led by a patient research partner (PLG, partner led group) and the other by an academic researcher (RLG, researcher led group).