Publications by authors named "Karen Stepan"

Article Synopsis
  • A study was conducted to evaluate a structured social work approach to help cancer patients select and prepare a medical decision-maker (MDM) as part of advance care planning.
  • Out of 360 patient/caregiver pairs, only 32% had completed their Medical Power of Attorney documents at the start, and only 8% completed them by the end of the three-month follow-up.
  • Despite low engagement in selecting MDMs, many patients experienced changes in their care preferences during the study, and the understanding between patients and their caregivers improved over time, although overall correlation remained weak.
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Advance care planning (ACP) has been identified as a fundamental part of every patient's total health care plan and is actively supported by a number of health care organizations. Despite these endorsements, however, having advance care planning conversations has not come easily for physicians. Training future physicians should include practical ways to address this issue.

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Purpose: With little to no infrastructure or standardized methodology in place to actively engage patients in advance care planning (ACP), The University of Texas MD Anderson Cancer Center set out to identify needed resources, develop an intervention to improve ACP, and evaluate the intervention's effects.

Methods: With the support of executive leadership, a multidisciplinary workgroup enlisted the support of ACP champions, performed a root-cause analysis, developed a detailed ACP process flow by provider role, developed patient and family education resources, and developed faculty and staff training materials. The workgroup also implemented two Plan-Do-Study-Act intervention cycles, which identified difficulty using the ACP note function in our electronic health record (EHR) as a barrier to ACP adoption.

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This study aims to apply the evidence-based practice (EBP) process to determine the factors that influence patients' understanding of, participation in, and satisfaction with clinical trials, the informed consent process, and treatment decisions and to make recommendations for improving clinical trials education. Beginning with evidence retrieval, the authors identified key search terms and searched MEDLINE--Ovid, MEDLINE--PubMed, and the Cumulative Index to Nursing and Allied Health Literature to identify articles published between July 2001 and July 2006 that highlighted clinical trials education. The articles were reviewed for clinical trials patient education information, clinician methods of communicating clinical trial information to patients, and patient satisfaction with the clinical trials process, including the informed consent process.

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Background: Providing quality written information in a consistent manner to all patients in a large cancer center presents a challenge.

Methods: A new chemotherapy guide was developed, piloted, and distributed institution-wide. Patients and nurses were surveyed during each of these steps.

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