An mHealth, patient engagement approach to understand and address parents' mental health and caregiving needs after prenatal diagnosis of critical congenital heart disease.

Objective: To provide an overview of the development of the Preparing Heart and Mind™ (PHM™) care program designed for parents with a prenatal diagnosis of critical congenital heart disease (CCHD) and describe issues of parental concern, caregiving competencies, and type and timing of PHM™ topics.

Methods: Guided participation theory underpinned intervention development and a mixed methods pilot of a novel, nurse-guided mHealth intervention. Parents were enrolled from the third trimester of pregnancy-12 weeks postnatally.

Applying the Theory of Guided Participation to Clinical Practice.

We present an evidence-based clinical teaching and learning method based on the middle-range theory of Guided Participation (GP). Typically, teaching and learning in a clinical setting refer to providing information based on the learner's diagnosed condition. With GP, the relationship between guide and patient or client is central to how GP sessions proceed.

Feeding infants with complex congenital heart disease: a modified Delphi survey to examine potential research and practice gaps.

Objective: To determine clinical consensus and non-consensus in regard to evidence-based statements about feeding infants with complex CHD, with a focus on human milk. Areas of non-consensus may indicate discrepancies between research findings and practice, with consequent variation in feeding management.

Materials And Methods: A modified Delphi survey validated key feeding topics (round 1), and determined consensus on evidence-based statements (rounds 2 and 3).

Patterns of Growth and Nutrition From Birth to 6 Months in Infants With Complex Congenital Cardiac Defects.

Background: Infants with complex congenital heart defects (CCHDs) experience alterations in growth that develop following surgical intervention and persist throughout early infancy, but the roles of nutritional intake and method of feeding require further exploration as their roles are not fully explained.

Objectives: The purpose of this study was to characterize trends in growth and nutritional intake during the first 6 months of life in infants with CCHD.

Methods: We conducted a secondary analysis of growth and nutritional data from a pilot study designed to test the feasibility of nurse-guided participatory intervention with parents of infants with CCHD.

Collaborative caregiving of parents who have an infant with congenital heart disease.

Purpose: Describe collaborative caregiving of the parents of an infant with congenital heart disease (CHD) with partner, health-care clinicians, and substitute caregivers (SC).

Design And Methods: In a national online survey, 53 mothers and 12 fathers described collaborative caregiving for infants after CHD intervention with respect to facets of Bowlby's concept of the internal working model of caregiving. Parents identified concern for 24 everyday common problems or goals (i.

An exploration of co-parenting in the context of caring for a child prenatally diagnosed and born with a complex health condition.

Aim: The aim of this study was to describe co-parenting communication in couples in the context of caregiving for children prenatally diagnosed and born with complex health conditions.

Background: Foetal diagnosis of complex health conditions such as heart, central nervous system, or abdominal anomalies are confirmed more often than ever before. Following diagnosis, parents face challenges beginning before birth.

Effectiveness of an internet-based education on maternal satisfaction in NICUs.

Objective: This study was conducted to evaluate the effect of internet-based education on the satisfaction of the mothers of the preterm neonates in the NICUs.

Methods: This quasi-experimental study was conducted on 80 mothers of preterm neonates hospitalized in the NICUs of two hospitals in Iran during 9 months. The mothers were assigned in two groups as cases and controls.

Impact of an internet-based intervention on Finnish mothers' perceptions of parenting satisfaction, infant centrality and depressive symptoms during the postpartum year.

Objective: this study evaluates how an internet-based intervention affects mothers' parenting satisfaction, infant centrality and depressive symptoms.

Design: a quasi-experimental design and repeated measures were used.

Settings: this study was conducted in two Finnish public maternity hospitals (intervention/control).

The early feeding skills assessment for preterm infants.

Preterm infants develop the skills necessary to begin oral feeding as their health stabilizes and as they reach a postconceptional age that supports coordination of breathing and swallowing with oral-motor functioning. The time from initiation of oral feeding to full oral feedings (with adequate intake for growth and maintenance of physiologic stability) can vary from days to months for the preterm infant. The approach to feeding the infant during this transition period must be developmentally supportive and tailored to meet the needs of the individual.

Infant and caregiving factors affecting weight-for-age and motor development of full-term and premature infants at 1 year post-term.

Guided by a theoretical process model, we examined direct and indirect effects of infants' biologic condition and experience, the caregiving environment, and caloric intake variables on two outcomes, weight-for-age and motor development, for 52 full-term and 47 premature infants at 12 months post-term age. For full-term infants, birth weight and infant expression of positive affect and behavior during feeding had predicted positive direct effects on weight-for-age. Infant regulation of negative affect and behavior had an unexpected negative effect on this outcome.

Growth patterns of extremely low-birth-weight hospitalized preterm infants.

Objective: To characterize the growth of extremely low-birth-weight (ELBW) infants during hospitalization in terms of weight gain, growth velocity, and relative change in weight.

Design: Retrospective, descriptive design.

Setting: Two neonatal intensive-care units located in the midwestern United States.