AMIA Annu Symp Proc
April 2019
People living with type 1 diabetes generate data as a byproduct of diabetes management. The development of decision support technologies can be enabled by harnessing these patient-generated data, but a major challenge is for these technologies to provide meaningful and highly personalized guidance to support individual patients' decision-making processes. In this paper, results from a year-long qualitative study were reported.
View Article and Find Full Text PDFBackground: As social media becomes increasingly popular online venues for engaging in communication about public health issues, it is important to understand how users promote knowledge and awareness about specific topics.
Objective: The aim of this study is to examine the frequency of discussion and differences by race and ethnicity of cancer-related topics among unique users via Twitter.
Methods: Tweets were collected from April 1, 2014 through January 21, 2015 using the Twitter public streaming Application Programming Interface (API) to collect 1% of public tweets.
In this study, we described the content and characteristics of 40 non-proprietary websites offering information about chronic kidney disease (CKD) and evaluated their information quality using the DISCERN scale and readability using Flesch Reading Ease and Flesch-Kincaid grade level. The areas in which the websites scored the lowest on the DISCERN scale were whether the website discussed knowledge gaps, presented balanced information, and was clear about the information source. Websites that rated higher quality on the DISCERN scale were more difficult to read.
View Article and Find Full Text PDFObjective: This study investigates how people use the Internet to search for an altruistic kidney donor. Although many opinion pieces on this phenomenon have been written, this is the first qualitative study focused on online kidney solicitation from the potential recipient's point of view.
Methods: Eight participants - four who successfully found donors and four who were still searching - were interviewed, and inductive content analysis was performed.