Publications by authors named "K A Knafl"
Parenting a seriously ill child is complex and emotionally intense. To further develop Hinds and colleagues' Good Parent themes: "Keeping a Positive Outlook" and "Keeping a Realistic Outlook," we reviewed grounded theories published in English language journals from January 2006 to April 2021 identifying 18 studies with relevant results. Parents' efforts to keep a positive outlook included cognitive (e.
View Article and Find Full Text PDFNurses caring for hospitalized children with long-term ventilator dependence (LTVD) assess family management capability and teach new skills through communication with family caregivers. This theoretically-based quantitative, descriptive study aimed to determine the communication behaviors associated with family caregiver uncertainty and management of the child with LTVD's care after discharge. One hundred families and 48 nurses enrolled.
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- The study investigates how communication between family caregivers and nurses affects the quality of life and clinical outcomes for children on long-term ventilators after discharge.
- It involves analyzing recorded conversations focusing on specific communication behaviors like listening, advocating, and negotiating care roles to identify their impact on children's post-discharge health.
- Results show that effective communication behaviors correlate with better outcomes, while negotiation of roles can lead to increased respiratory infections, highlighting the importance of collaborative care.
Background: Infants with developmental risk factors are more likely to have feeding problems and develop chronic feeding disorders. Early detection and understanding of the progression of problematic feeding and its relationship with a child's biological functioning and the family feeding environment will enhance effective symptom management and development of interventions to prevent pediatric feeding disorders.
Objectives: The New Through Two (NewThru2) feeding study protocol is described.
Background: To advance oncology treatment for adults, comprehensive understanding of how and why people decide to enroll in, remain in, and withdraw from cancer clinical trials is needed. While quantitative findings provide insights into these benefits and burdens, they provide limited understanding of how adults with cancer appraise their situation and approach decisions to undertake a clinical trial. The goal of this mixed methods analysis was to conceptualize participants' assessment of benefits and burdens related to cancer clinical trial participation.
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