Publications by authors named "Julien E Forder"
Background: The aim of the current study was to evaluate the structural validity of the 20-item long-term conditions questionnaire (LTCQ) and to explore a potential short-form version of the scale using Rasch analysis.
Methods: Data were collected through postal surveys (February 2016-January 2017) from a sample of 1,211 participants diagnosed with at least one long-term condition (LTC). Identified participants were invited through either local authorities for a social care cohort (n = 294) or primary care practices for a health care cohort (n = 917).
Article Synopsis
- The study developed a mapping algorithm to estimate EuroQoL 5 Dimension (EQ-5D) utilities from responses to the Long-Term Conditions Questionnaire (LTCQ), aiming to enhance its use in evaluating integrated care initiatives.
- Data was collected from three studies, combining 1334 responses, of which 1001 were used for estimation and 333 for internal validation; various models were tested to find the most accurate method for predicting EQ-5D utilities.
- The best-performing model was a two-part Ordinary Least Squares (OLS) model, which achieved low error rates in estimating EQ-5D utilities, indicating that the LTCQ can now produce utility values for economic analyses.
Objective: The aim of this study was to validate a new generic patient-reported outcome measure, the Long-Term Conditions Questionnaire (LTCQ), among a diverse sample of health and social care users in England.
Design: Cross-sectional validation survey. Data were collected through postal surveys (February 2016-January 2017).
Background: The ASCOT-Carer is a self-report instrument designed to measure social care-related quality of life (SCRQoL). This article presents the psychometric testing and validation of the ASCOT-Carer four response-level interview (INT4) in a sample of unpaid carers of adults who receive publicly funded social care services in England.
Methods: Unpaid carers were identified through a survey of users of publicly funded social care services in England.
Objectives: To explore the views of a range of stakeholders regarding whether patient-reported outcome measures (PROMs) can be developed to measure key attributes of long-term conditions (LTCs) care in England, and the potential value of a single generic measure.
Design: Qualitative semistructured interview study, analysed using a framework approach.
Participants And Setting: Interviews with 31 stakeholders from primary care, secondary care, social care, policy and patient-focused voluntary organisations in England.
Background: The adult social care outcomes toolkit (ASCOT) includes a preference-weighted measure of social care-related quality of life for use in economic evaluations. ASCOT has eight attributes: personal cleanliness and comfort, food and drink, control over daily life, personal safety, accommodation cleanliness and comfort, social participation and involvement, occupation and dignity. This paper aims to demonstrate the construct validity of the ASCOT attributes.
View Article and Find Full Text PDFHow should we measure the value of long-term (social) care? This paper describes a care-related quality of life instrument (ASCOT) and considers aspects of its validity. In particular the aim is to assess whether ASCOT is better suited to measuring the impact of long-term care services than the EQ5D health-related quality of life measure. Long-term care services tend to be more concerned with addressing the day-to-day consequences of long-term conditions.
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