Optimizing Virtual Follow-Up Care: Realist Evaluation of Experiences and Perspectives of Patients With Breast and Prostate Cancer.

Background: Virtual follow-up (VFU) has the potential to enhance cancer survivorship care. However, a greater understanding is needed of how VFU can be optimized.

Objective: This study aims to examine how, for whom, and in what contexts VFU works for cancer survivorship care.

Exploring the experiences of cancer survivors and their caregivers accessing supportive care services in New Brunswick, Canada.

Supportive care services can reduce distress and improve quality of life for cancer survivors and their caregivers. However, people often struggle to access these services. With this issue in mind, the current study aimed to explore the experiences of cancer survivors and their caregivers in accessing supportive care services in New Brunswick, Canada, as well as their prospective interest in a provincial supportive care centre.

Supportive care services in New Brunswick, Canada: An environmental scan.

Cancer diagnosis and treatment often have significant physical and psychological implications for both the survivor and their family/caregivers. Necessary services extend beyond medical treatment and include a variety of supportive care services (SCS) that address individuals' physical, social, educational, and emotional needs. This study seeks to map the SCS available in the province of New Brunswick (NB), Canada, for cancer survivors, their families, and their caregivers.

Virtual follow-up care among breast and prostate cancer patients during and beyond the COVID-19 pandemic: Association with distress.

Background: The purpose of this study was to investigate associations between self-reported distress (anxiety/depression) and satisfaction with and desire for virtual follow-up (VFU) care among cancer patients during and beyond the COVID-19 pandemic.

Methods: Breast and prostate cancer patients receiving VFU at an urban cancer centre in Toronto, Canada completed an online survey on their sociodemographic, clinical, and technology, characteristics and experience with and views on VFU. EQ5D-5 L was used to assess distress.

Understanding and addressing changing administrative workload in primary care in Canada: protocol for a mixed-method study.

Introduction: Many Canadians struggle to access the primary care they need while at the same time primary care providers report record levels of stress and overwork. There is an urgent need to understand factors contributing to the gap between a growing per-capita supply of primary care providers and declines in the availability of primary care services. The assumption of responsibility by primary care teams for services previously delivered on an in-patient basis, along with a rise in administrative responsibilities may be factors influencing reduced access to care.

Comparison of patients' perceptions of family physicians' patient-centeredness between virtual and in-person clinical encounters: A cross-sectional study.

Introduction: A clinician's patient-centeredness is a core construct of quality healthcare and is associated with several positive patient outcomes. This study aimed to compare patient-perceived patient centeredness between in-person and virtual clinical encounters during the coronavirus pandemic.

Materials And Methods: Participants completed an online anonymous questionnaire pertaining to a recent clinical encounter.

Patient Engagement in Health Research: Perspectives from Patient Participants.

Background And Purpose: Over the past decade, patient engagement (PE) has emerged as an important way to help improve the relevance, quality, and impact of health research. However, there is limited consensus on how best to meaningfully engage patients in the research process. The goal of this article is to share our experiences and insights as members of a Patient Advisory Committee (PAC) on a large, multidisciplinary cancer research study that has spanned six years.

Every Story Is Different: Experiences With Body Changes Related to Cancer.

One of the important aspects of stakeholder engagement in cancer care and system planning is hearing from individuals who have been diagnosed with cancer about the impact of the diagnosis and treatment on their lives. Hearing stories from the perspectives of cancer survivors offers opportunity to gain new insight and understanding about experiences of being diagnosed and treated for cancer. This article presents ten short narratives about survivors' perspectives on body image and cancer.

Risk Stratification and Cancer Follow-Up: Towards More Personalized Post-Treatment Care in Canada.

After treatment, cancer survivors require ongoing, comprehensive care to improve quality of life, reduce disability, limit complications, and restore function. In Canada and internationally, follow-up care continues to be delivered most often by oncologists in institution-based settings. There is extensive evidence to demonstrate that this model of care does not work well for many survivors or our cancer systems.

Motivations for cancer history disclosure among young adult cancer survivors.

Purpose: To gain an in-depth understanding of the motivations for cancer history disclosure and/or non-disclosure among young adult cancer survivors.

Methods: Using a constructivist grounded theory approach, semi-structured telephone interviews were conducted with breast and testicular cancer survivors diagnosed between the ages of 18 and 39 from across Canada.

Findings: Twenty-eight young adult cancer survivors (16 female; 12 male) participated in this study.

Primary care providers' experiences with and perceptions of personalized genomic medicine.

Objective: To assess primary care providers' (PCPs') experiences with, perceptions of, and desired role in personalized medicine, with a focus on cancer.

Design: Qualitative study involving focus groups.

Setting: Urban and rural interprofessional primary care team practices in Alberta and Ontario.

Coordination of cancer care between family physicians and cancer specialists: Importance of communication.

Objective: To explore health care provider (HCP) perspectives on the coordination of cancer care between FPs and cancer specialists.

Design: Qualitative study using semistructured telephone interviews.

Setting: Canada.

Patients' experiences with continuity of cancer care in Canada: Results from the CanIMPACT study.

Objective: To explore patient perspectives on and experiences with the coordination and continuity of cancer care.

Design: Qualitative study using semistructured telephone interviews.

Setting: Canada.

Do new and traditional models of primary care differ with regard to access?: Canadian QUALICOPC study.

Objective: To examine access to primary care in new and traditional models using 2 dimensions of the concept of patient-centred access.

Design: An international survey examining the quality and costs of primary health care (the QUALICOPC study) was conducted in 2013 in Canada. This study adopted a descriptive cross-sectional survey method using data from practices across Canada.

Young adult cancer survivors and the challenges of intimacy.

The purpose of this study was to explore intimate relationships after a cancer diagnosis, applying constructivist grounded theory to interviews with 55 Canadian young adult cancer survivors. The core category found was the dynamic interplay between participants' experiences of cancer and their intimate relationships. The authors found four themes within this core category: the mental experience of cancer, challenged sexual intimacy, the relationship response to strain (supportive or nonsupportive), and adapted intimacy.

It's the "good" cancer, so who cares? Perceived lack of support among young thyroid cancer survivors.

Purpose/objectives: To describe the survivorship experience of young adult patients with thyroid cancer.

Research Approach: A qualitative, descriptive study.

Setting: Four Canadian provinces, with most participants from Ontario.

Comparing urban and rural young adult cancer survivors' experiences: a qualitative study.

Introduction: Large administrative data set analyses demonstrate that geography has a significant impact on access to health care and subsequent health outcomes. In general, rural populations have poorer access to healthcare services. This article explores the reality of this issue for young adult cancer survivors.

Rehabilitation after breast cancer: recommendations from young survivors.

Purpose: Studies show that younger women have a greater physical, psychological, and social morbidity, and poorer quality of life after a breast cancer diagnosis than older women. With improving survival rates, cancer rehabilitation has an increasing role in the cancer care continuum, particularly for younger women who potentially have many productive years ahead of them. The purpose of this study was to assess the cancer rehabilitation needs of young women after breast cancer treatment.

Barriers to rehabilitative care for young breast cancer survivors: a qualitative understanding.

Purpose: The goal of this study was to assess the rehabilitation needs of young women breast cancer survivors under the age of 50 and to identify factors that may impact or prevent cancer rehabilitation utilization.

Methods: Utilizing a grounded theory methodology, 35 young breast cancer survivors were interviewed twice in four Atlantic Canadian provinces.

Results: A considerable number of barriers exist to receiving rehabilitative care post-treatment for young breast cancer survivors.

"You can only take so much, and it took everything out of me": coping strategies used by parents of children with cancer.

Objective: This study qualitatively assesses the coping strategies of parents who care for a child with cancer.

Method: Semi-structured interviews were conducted with 28 French and English families who had had a child diagnosed with cancer in the last ten years in two Eastern Canadian provinces. Interviews were transcribed verbatim and coded with a focus on parental coping strategies.

Young women's responses to smoking and breast cancer risk information.

Current evidence confirms that young women who smoke or who have regular long-term exposure to secondhand smoke (SHS) have an increased risk of developing premenopausal breast cancer. The aim of this research was to examine the responses of young women to health information about the links between active smoking and SHS exposure and breast cancer and obtain their advice about messaging approaches. Data were collected in focus groups with 46 women, divided in three age cohorts: 15-17, 18-19 and 20-24 and organized according to smoking status (smoking, non-smoking and mixed smoking status groups).

The challenges and rewards of rural family practice in New Brunswick, Canada: lessons for retention.

Introduction: This study examined the work environment of rural family physicians in New Brunswick, a province in eastern Canada. The purpose of the research was to explore the job satisfaction of rural family physicians based on gender, age, years in practice, and language and location of practice.

Methods: We used a qualitative, collective case study approach (24 cases of two individuals each: 48 interviews).

Crossing boundaries: family physicians' struggles to protect their private lives.

Objective: To explore the tensions between professional and personal boundaries and how they affect the work and private lives of family physicians.

Design: Qualitative case study using semistructured interviews.

Setting: Province of New Brunswick.

Disrespect, harassment, and abuse: all in a day's work for family physicians.

Objective: To examine harassment and abusive encounters between family physicians and their patients or colleagues in the workplace.

Design: Qualitative case study using semistructured interviews.

Setting: Province of New Brunswick.