Publications by authors named "Josiane Boyne"
Background: eHealth products have the potential to enhance heart failure (HF) care by identifying at-risk patients. However, existing risk models perform modestly and require extensive data, limiting their practical application in clinical settings. This study aims to address this gap by validating a more suitable risk model for eHealth integration.
View Article and Find Full Text PDFBackground: Heart failure (HF) is a chronic disease characterized by high mortality and healthcare expenditures. Digital health solutions, including mobile health applications (apps), offer opportunities to enhance patients' self-care and quality of life. This qualitative study aimed to explore expectations, experiences, and usage behaviour of HF-patients regarding a self-care app ( app).
View Article and Find Full Text PDFAims: This study aims to (i) test the validity and reliability of the Care Dependency Scale (CDS) for patients with heart failure (HF) and (ii) test the validity and reliability of the proxy version of the CDS assessing informal caregivers' perception of the dependency level of individuals with HF.
Methods And Results: Secondary data analysis was conducted of transnational multicentre cross-sectional design study. A convenience sample comprised of HF patients-informal caregivers' dyads in three European countries.
Aim: This paper describes the trajectory during 1 year of four patient-reported outcomes (PROs), namely, sleep, depressive symptoms, health-related quality of life (HrQoL), and well-being, in patients with heart failure (HF), their relationship and the patient characteristics associated with changes in these PROs.
Methods And Results: Data analyses of PROs from 603 patients (mean age 67 years; 29% female, 60% NYHA II) enrolled in the HF-Wii study. On short term, between baseline and 3 months, 16% of the patients experienced continuing poor sleep, 11% had sustained depressive symptoms, 13% had consistent poor HrQoL, and 13% consistent poor well-being.
Aims: To develop a comprehensive understanding of caregiver burden and its predictors from a dyadic perspective.
Method: A convergent mixed methods design was used. This study was conducted in three European countries, Italy, Spain, and the Netherlands.
Background: Informal caregivers contribute substantially to the self-care of people with heart failure (HF) by helping with concrete and interpersonal tasks. Time perception and management are essential issues among caregivers. However, investigators have not explored this topic in caregivers of people with HF.
View Article and Find Full Text PDFArticle Synopsis
- Heart failure (HF) is a serious health issue that can lead to people needing to go to the hospital often, so a study called the NWE-Chance project looked at helping patients recover at home using a digital health tool.
- The study involved 63 patients and 22 healthcare professionals who tested a system that included devices to check vital signs and a coach to help patients manage their health.
- While healthcare workers found the digital platform usable, they suggested ways to improve its use before it could be fully rolled out to help more patients recover at home.
Article Synopsis
- Heart failure (HF) affects over 15 million people in Europe, causing serious issues for healthcare systems, leading countries like Germany, Ireland, the Netherlands, and the UK to create different care strategies.
- Researchers talked to patients, caregivers, and healthcare experts to find out how these countries manage HF care.
- While all countries follow similar medical guidelines, they face common problems like lack of healthcare in rural areas, long wait times, and poor use of technology, but including HF-nurses and better digital tools could help improve care.
Background: Hospitalisations for heart failure are frequent and costly, linked with a lower quality of life, and lead to higher morbidity and mortality. Home hospitalisation interventions could be a substitute for in-hospital stays to reduce the burden on patients. The current study aims to investigate patient-reported satisfaction and usability in combination with the safety of a digital health-supported home hospitalisation intervention for heart failure patients.
View Article and Find Full Text PDFBackground: Heart failure is a severe condition and telemedicine can improve the care of heart failure. Many patients are unable to use telemedicine applications due to visual impairment and limited health-related literacy. Avatar technology might help to overcome these limitations.
View Article and Find Full Text PDFAim: The aim of the study is to discuss the changing role of patients, nurses and doctors in an era of digital health and heart failure care.
Background: With a growing demand for heart failure care and a shortage of health care professionals to meet it, digital technologies offer a potential solution to overcoming these challenges.
Evaluation: In reviewing pertinent research evidence and drawing on our collective clinical and research experiences, including the co-design and development of an autonomous remote system, DoctorME, we offer some reflections and propose some practical suggestions for nurturing truly collaborative heart failure care.
Article Synopsis
- Effective management of Heart Failure (HF) requires both medical treatment and patient education, but there's little knowledge on which healthcare professionals provide specific support in HF care.* -
- A study with 15 cardiologists, 35 general practitioners, and 8 HF-nurses revealed that while all professionals engage in patient education, HF-nurses prioritize it, whereas physicians typically do very little.* -
- No healthcare professionals addressed all key education topics recommended by the European Society of Cardiology, indicating gaps in HF patient education across the three regions studied.*
Aims: To explore caregivers' needs and problems in three European countries and associate the clusters of caregivers' needs with their sociodemographic characteristics.
Design: A qualitative focused mixed methods design was used.
Methods: In total, 52 caregivers of heart failure (HF) people were interviewed in three European countries between March 2017 and December 2018.
Introduction: To alleviate the burden of Heart Failure (HF), the European Society of cardiology developed guidelines (ESC-guidelines) to optimise HF-diagnosis and treatment. These guidelines state that optimal HF-care is organised in a multidisciplinary programme in which pharmacological and non-pharmacological treatment is offered. Research has proven that multidisciplinary programmes and effective self-care behaviour significantly reduce HF-mortality and (re)hospitalisation, yet little is known about implementation of these ESC-guidelines.
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- The study investigates the implementation of needs assessment tools to improve the recognition of palliative care needs among patients with advanced chronic heart failure, focusing on contextual factors affecting this process.
- It involves interviews and focus groups with 29 healthcare professionals in the Netherlands, uncovering barriers like limited knowledge of palliative care, challenges in starting palliative treatment, and poor communication among professionals.
- The findings suggest that a comprehensive strategy is required to enhance education, collaboration, and support for both healthcare workers and patients in order to effectively implement these tools in heart failure care.
Aim: To develop a comprehensive understanding of resilience and its associated factors among informal caregivers of people with heart failure.
Design: Transnational multicentre convergent mixed methods approach.
Methods: This study was conducted in three European countries: Italy, Spain and the Netherlands; during February 2017 and December 2018.
Introduction: Heart failure is a serious burden on health care systems due to frequent hospital admissions. Early recognition of outpatients at risk for clinical deterioration could prevent hospitalization. Still, the role of signs and symptoms in monitoring heart failure patients is not clear.
View Article and Find Full Text PDFBackground: Heart failure (HF) is a common cause of hospitalisation and mortality in elderly. The frequent rehospitalisations put a serious burden on patients, health-care budgets, and health-care capacity. Frequent hospital admissions are also associated with a substantial additional hazard for serious complications and reduced quality of life.
View Article and Find Full Text PDFBackground: The European Heart Failure Self-Care Behaviour Scale (EHFScBS) is used worldwide to measure heart failure (HF) patient self-care, but a caregiver version does not exist.
Objective: To develop and test the European HF Self-Care Behaviour Scale for Caregivers (EHFScBS-C) in a population of informal caregivers of HF patients.
Methods: The EHFScBS-C was derived from the EHFScBS to measure the extent to which caregivers contribute to HF patient self-care.
Introduction: Healthcare professionals (HCPs) experience difficulties in timely recognising and directing palliative care (PC) needs of their patients with chronic heart failure (CHF). The aim of this study was to develop a comprehensive tool to enable HCPs in timely recognising and directing PC needs in CHF.
Methods: A four-stage mixed-method study was performed.
Background: The delivery of palliative care interventions is not widely integrated in chronic heart failure care as the recognition of palliative care needs is perceived as difficult. Tools may facilitate healthcare professionals to identify patients with palliative care needs in advanced chronic heart failure.
Aim: To identify tools to help healthcare professionals recognize palliative care needs in patients with advanced chronic heart failure.
The Heart Failure Association of the European Society of Cardiology has published a previous position paper and various guidelines over the past decade recognizing the value of palliative care for those affected by this burdensome condition. Integrating palliative care into evidence-based heart failure management remains challenging for many professionals, as it includes the identification of palliative care needs, symptom control, adjustment of drug and device therapy, advance care planning, family and informal caregiver support, and trying to ensure a 'good death'. This new position paper aims to provide day-to-day practical clinical guidance on these topics, supporting the coordinated provision of palliation strategies as goals of care fluctuate along the heart failure disease trajectory.
View Article and Find Full Text PDFBackground: Palliative care can improve outcomes for patients with advanced chronic heart failure and their families, but timely recognition of palliative care needs remains challenging.
Aim: The aim of this study was to identify characteristics of a tool to assess palliative care needs in chronic heart failure that are needed for successful implementation, according to patients, their family and healthcare professionals in The Netherlands.
Methods: Explorative qualitative study, part of the project 'Identification of patients with HeARt failure with PC needs' (I-HARP), focus groups and individual interviews were held with healthcare professionals, patients with chronic heart failure, and family members.