Publications by authors named "Jordan P Richardson"
Background And Objectives: To understand why patients with drug-resistant epilepsy (DRE) pursue invasive electrical brain stimulation (EBS).
Methods: We interviewed patients with DRE (n = 20) and their caregivers about their experiences in pursuing EBS approximately 1 year post device implant. Inductive analysis was applied to identify key motivating factors.
Sex chromosome multisomies (SCMs) are genomic conditions with variable phenotypes that range from undetectable to requiring extensive clinical intervention. Currently, many individuals with SCMs are diagnosed in adolescence or adulthood based on physical symptoms related to pubertal development and infertility. Given the expansion of genetic testing in routine clinical practice, the diagnosing clinician is increasingly a primary care or family medicine provider.
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- The study explores patient perspectives on healthcare AI, emphasizing the importance of aligning patient values with new technology implementations in healthcare.
- Fifteen focus groups were conducted to analyze how various personal experiences, interactions with health systems, and attitudes towards technology shape patient beliefs about AI in healthcare.
- The findings provide a theoretical framework to better understand these attitudes, which is essential for effective patient engagement and education regarding future AI applications in healthcare.
Article Synopsis
- There is growing interest in using AI technologies in healthcare, but not many studies have explored patient opinions about them.
- In a study with 15 focus groups, patients expressed various concerns regarding AI, such as safety, loss of choice, rising costs, biases in data, and data security.
- For patients to accept AI in healthcare, it is crucial to address these concerns, which is essential for ethical innovation and the future success of AI applications in the field.
Objective: Owing to fragmentation in the medical system, many parents of children with disabilities report taking on a care coordinator and advocate role. The parental advocacy and care coordination requirements are further amplified in this population because of a lack of awareness about sex chromosome aneuploidies (SCAs) in medical and social services settings, as well as the complex needs of affected children. This burden disproportionately affects mothers and low-resource families as a result of gendered ideas of parenthood and social stratification in resource access.
View Article and Find Full Text PDFQuantitative MRI is increasingly being used as a biomarker in neurological disorders. Cerebellar atrophy occurs in some Alternating Hemiplegia of Childhood (AHC) patients. However, it is not known if cerebellar atrophy can be a potential biomarker in AHC or if quantitative MRI is a reliable method to address this question.
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