Publications by authors named "Jop B L van der Meer"

Article Synopsis
  • The study explores the experiences and needs of informal caregivers (ICs) involved in shared decision-making (SDM) for patients over 70 with severe aortic stenosis (AS).
  • It found that while most ICs prefer to be collaborative partners in decision-making, they often feel overlooked by healthcare professionals when it comes to discussing the patient's daily life.
  • Higher perceived involvement in SDM is linked to better quality of life and lower distress for ICs, emphasizing the need for professionals to actively include them in the decision-making process.
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Background: In the Netherlands, it is customary to discuss directives regarding resuscitation, intubation, and ICU-admission with patients and/or their relatives upon hospital-admission. The outcome of this discussion is documented in a code status. Ideally, these advance care planning (ACP)-related decisions are made by a patient (and/or their relatives) and a professional together in a shared decision-making (SDM) process, to improve patient satisfaction and prevent undesired care.

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Objective: To provide insight into professionals' perceptions of and experiences with shared decision-making (SDM) in the treatment of symptomatic patients with severe aortic stenosis (AS).

Methods: A semistructured interview study was performed in the heart centres of academic and large teaching hospitals in the Netherlands between June and December 2020. Cardiothoracic surgeons, interventional cardiologists, nurse practitioners and physician assistants (n=21) involved in the decision-making process for treatment of severe AS were interviewed.

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