Publications by authors named "Jonathon Hope"
Article Synopsis
- The International Consortium for Health Outcomes Measurement (ICHOM) created a standardized set of outcome measures for older adults to improve healthcare quality and care pathways.
- A modified Delphi technique was used by an international panel to reach consensus on key measures, focusing on factors like decision-making, emotional health, and overall survival.
- The resulting measures are designed for healthcare providers and payers, not for research, promoting learning and quality improvement across healthcare systems.
Background: Spiritual distress is prevalent in advanced disease, but often neglected, resulting in unnecessary suffering. Evidence to inform spiritual care practices in palliative care is limited.
Aim: To explore spiritual care needs, experiences, preferences and research priorities in an international sample of patients with life-limiting disease and family caregivers.
Introduction: People with End Stage Renal Disease rarely choose home dialysis therapies even though they can offer a range of Quality-of-Life (QOL) benefits such as improved convenience, mental health well-being, employment, reduced mortality and cost effectiveness. Attempts to increase usage of such self-caring modalities, have met with limited success, in part due to a lack of understanding of patient decision making and patient perceived barriers to such therapies.
Objective: To explore the patient perspective on the main barriers to a range of self-care or home dialysis therapies, including Continuous Ambulatory Peritoneal Dialysis, Home Haemodialysis and Extended Home Haemodialysis.