Background: Service user involvement is embedded in the United Kingdom's National Health Service, but knowledge about the impact of involvement on service users, such as the benefits and challenges of involvement, is scant. Our research addresses this gap.
Objective: To explore the personal impact of involvement on the lives of service users affected by cancer.
Objective: This paper aims to support the critical development of user involvement in systematic reviews by explaining some of the theoretical, ethical and practical issues entailed in 'getting ready' for user involvement.
Background: Relatively few health or social care systematic reviews have actively involved service users. Evidence from other research contexts shows that user involvement can have benefits in terms of improved quality and outcomes, hence there is a need to test out different approaches in order to realize the benefits of user involvement and gain a greater understanding of any negative outcomes.
Support Care Cancer
October 2007
Background: The assessment of patients' needs for care is a critical step in achieving patient-centred cancer care. Tools can be used to assess needs and inform care planning. This review discusses the importance of systematic assessment of needs in routine care and the contribution tools can make to this process.
View Article and Find Full Text PDFObjectives: In the UK policy recommends that service users (patients, carers and the public) should be involved in all publicly funded health and social care research. However, little is known about which approaches work best in different research contexts and why. The purpose of this paper is to explain some of the theoretical limitations to current understandings of service user involvement and to provide some suggestions for theory and methods development.
View Article and Find Full Text PDFPatient and Public Involvement (PPI) is a cornerstone of UK National Health Service (NHS) policy. The Cancer Partnership Project (CPP) is the leading national PPI initiative in cancer care. The CPP espouses a "partnership" model, with a "Partnership Group" - collaborative service improvement groups formed of NHS staff and service users - in each of 34 cancer networks in England.
View Article and Find Full Text PDFAims And Objectives: To investigate the characteristics and achievements of cancer partnership groups--collaborative service improvement groups formed of NHS staff and service users--in the 34 cancer networks in England, and in particular to explore the influence that such groups had on local cancer services.
Design: A qualitative approach employing a structured telephone survey, face-to-face interviews and documentary analysis.
Participants And Setting: Thirty cancer networks in England with an active Partnership Group completed the telephone survey.
Survey research is sometimes regarded as an easy research approach. However, as with any other research approach and method, it is easy to conduct a survey of poor quality rather than one of high quality and real value. This paper provides a checklist of good practice in the conduct and reporting of survey research.
View Article and Find Full Text PDFIntensive Crit Care Nurs
August 2002
The advance of the evidence-based practice (EBP) movement has been evident in almost every Western country and health system over the past two or three decades, fuelled by an ever-rising demand on resources. Nurses at all levels are increasingly expected to address the key challenge of EBP, which is to use research evidence in a conscientious, explicit and judicious way when making decisions about patient care. The main aim of the paper is to encourage nurses to embrace the challenge of EBP.
View Article and Find Full Text PDFThis article, the last in the series on lymphoedema, presents a survey of priorities in lymphoedema research conducted among lymphoedema treatment practitioners in the UK. Using a two-stage survey method, members of the British Lymphology Society were asked to identify areas lacking in a good evidence base which were crucial for informing clinical decision-making and service developments. Nine priority research questions were identified by the practitioners, with general agreement among respondents of the ranking order.
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