End-of-life care in adults with congenital heart disease: now is the time to act.

Purpose Of Review: There are increasing numbers of adults with congenital heart disease (CHD) and these patients remain at long-term risk of complications and premature death. This review focuses on the changing picture of adult CHD with more complex patients surviving, the challenges of balancing life-prolonging intervention, the barriers to discussing the end-of-life (EOL) issues and draws on the experience of other specialities in managing young patients.

Recent Findings: The prevalence of adults with the most severe forms of CHD has increased, especially those with a Fontan circulation.