Publications by authors named "Jocelyne Nouvet-Gire"

Introduction: Treatment persistence and adherence are essential for achieving therapeutic goals in patients with multiple sclerosis (MS). OroSEP is an independent patient-support program (PSP) in France for patients with relapsing-remitting MS (RRMS) receiving oral disease-modifying therapies.

Methods: TEC-ADHERE (NCT04221191; 08/19/2019-09/15/2022) was a prospective, non-interventional, phase 4 study to assess the effect of OroSEP on persistence and adherence to dimethyl fumarate (DMF; Tecfidera™) in patients with RRMS.

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This is a summary of a previously published paper: Joint Healthcare Professional and Patient Development of Communication Tools to Improve the Standard of MS Care. It describes a collaboration between people with multiple sclerosis (PwMS) and healthcare professionals (HCPs) to identify challenges in multiple sclerosis (MS) care and design tools to improve communication during consultations.

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Article Synopsis
  • - Effective communication between patients and healthcare professionals (HCPs) is essential for improving outcomes in multiple sclerosis (MS), but many patients report a disconnect in this communication.
  • - The MS in the 21st Century Steering Group developed two communication tools—"myMS priorities" and "myMS commitments"—to address issues like HCP time constraints and misaligned priorities during appointments.
  • - These tools were created using a collaborative approach based on expert input from both patients and HCPs, and future steps will involve validating their effectiveness in real-world settings.
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Background: Patient engagement is vital in multiple sclerosis (MS) in order to optimise outcomes for patients, society and healthcare systems. It is essential to involve all stakeholders in potential solutions, working in a multidisciplinary way to ensure that people with MS (PwMS) are included in shared decision-making and disease management. To start this process, a collaborative, open environment between PwMS and healthcare professionals (HCPs) is required so that similarities and disparities in the perception of key areas in patient care and unmet needs can be identified.

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