Background: Pediatric oncologists are responsible for ensuring that adolescent and young adult (AYA) childhood cancer survivors have the knowledge and skills necessary to manage their follow-up care in adult healthcare systems.
Procedures: To describe transition practices and barriers to transfer, we electronically surveyed U.S.
In a pediatric inpatient setting, an interdisciplinary team designed and implemented an online journal club to discuss current nursing trends and research, as well as to foster evidence-based practice. This article is Part II of a two-part series in which the implementation process is described.
View Article and Find Full Text PDFIn a pediatric inpatient setting, an interdisciplinary team designed and implemented an online journal club to discuss current nursing trends and research and to foster evidence-based practice. This article is Part I of a two-part series in which the process will be described.
View Article and Find Full Text PDFThe importance of successfully transitioning pediatric patients to adult care is increasingly recognized as more children with chronic diseases are living to adulthood. The aim of this study was to investigate the current state of provider perceptions across disciplines regarding transition of pediatric patients to adult care. Focus groups made up of providers of various roles and experience levels were conducted.
View Article and Find Full Text PDFPurpose: To determine patients' and parents' perceptions regarding the delivery of transition education and perceived barriers to transfer to adult oriented care.
Methods: A self-report survey was administered to a convenience sample of patients (16-25 years old) with various childhood onset chronic diseases. A similar survey was administered to their parents/guardians.
Negative outcomes are consistently reported when adolescent solid organ transplant recipients are transitioned to adult transplant programs. The purpose of this quality improvement project was to understand the perceptions of patients and their parents about self-care management at transition. Solid organ transplant recipients, 16 to 22 years of age (n = 10), in a 396-bed pediatric hospital in the northeastern United States and their parents (n = 10) completed semi-structured interviews regarding health, transplant history, and participants' thoughts and feelings related to transitioning to adult transplant centers.
View Article and Find Full Text PDFObjectives: This study sought to elucidate referral patterns and barriers to adult congenital heart disease (ACHD) care, as perceived by pediatric cardiologists (PCs).
Background: Management guidelines recommend that care of adults with moderate/complex congenital heart disease be guided by clinicians trained in ACHD.
Methods: A cross-sectional survey was distributed to randomly selected U.
Estimates indicate that approximately 1.7 million youth are homeless in the United States. Many associated risk factors have been identified for adolescent homelessness, including family conflict, leaving foster care, running away or being thrown away, physical or sexual abuse, and coming out to parents as gay, lesbian, bisexual, transgender, or questioning one's sexual identity (GLBTQ).
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