Publications by authors named "Joanna Wierzba"
COVID-19 Pandemic and Patients with Rare Inherited Metabolic Disorders and Rare Autoinflammatory Diseases-Organizational Challenges from the Point of View of Healthcare Providers.
Ewa Tobór-Świętek Jolanta Sykut-Cegielska Mirosław Bik-Multanowski Mieczysław Walczak Dariusz Rokicki Joanna Wierzba
J Clin Med
October 2021
Article Synopsis
- The COVID-19 pandemic has posed significant challenges for healthcare providers and patients with rare inherited metabolic disorders (IMD) and rare autoinflammatory diseases (AD) in Poland.
- A study conducted through surveys revealed that 35% of healthcare units experienced disruptions in regular appointments, predominantly due to patient infections, and only about two-thirds of patients engaged in remote consultations.
- While most hospitals managed to maintain some level of care, the findings suggest a need for broader adoption of telemedicine and alternative treatment methods to better support these vulnerable patients during ongoing and future health crises.