Objective: to conduct and describe results from a process evaluation of home-based life saving skills (HBLSS) one year post-implementation.
Design: a non-experimental, descriptive design was utilised employing both qualitative and quantitative techniques for data collection including: (1) key informant interviews, (2) group discussions, (3) performance testing, and (4) review of programme data.
Setting: rural Matlab, Bangladesh in the sub-district of Chandpur.
Purpose: The purpose of this study was to examine the relationship of strains, resources, feelings, and behaviors about treatment adherence reported by youth with cystic fibrosis (CF) with repeated clinic measures of their pulmonary function and nutritional status.
Methods: Linear mixed models, stratified by gender, adjusting for age, were used to examine the effects of strains, resources, and adherence behaviors on repeated pulmonary function and nutritional status measures. All 10-21 years old with CF at the Minnesota Cystic Fibrosis Center were invited by mail to participate.
We investigated whether uncertainty about the impact of children's chronic health conditions on their daily lives leads to changes in mothers' and fathers' mental and physical health. Three waves of data were collected over three years from parents of 228 children with chronic health conditions. Parents reported their level of uncertainty about how the child's health condition affected the child's daily life, as well as measures of their own mental and physical health at each wave of data collection.
View Article and Find Full Text PDFBackground: Some prior studies have reported that girls with cystic fibrosis (CF) experience higher morbidity and mortality compared to boys. In this study, the authors compared boys' and girls' perceptions of disease-related strains and resources associated with living with CF, and the relationship of these factors to CF treatment feelings and behaviors.
Methods: All 10-21 year olds with CF at the Minnesota Cystic Fibrosis Center were invited by mail to complete a new self-report survey (Living with CF Questionnaire--LCFQ).
Objective: To examine the impact of the severity of a child's chronic condition on family functioning from the perspectives of mothers and fathers and to compare their reports with the functioning of families with healthy children.
Methods: Mothers and fathers in two-parent families of 160 infants and 102 pre-adolescents with a wide range of chronic health conditions (noncategorical approach) completed standard self-report inventories.
Results: The families of children with chronic conditions functioned as well or better compared with normative data for families with healthy children.
J Epidemiol Community Health
August 2004
Study Objective: To discover if area level social cohesion, neighbourhood safety, and home safety are associated with current cigarette smoking among adults after adjustment for concentrations of poverty and low education.
Design: Cross sectional survey of a random sample of adults, stratified by 19 geographical areas.
Setting: SHAPE, Survey of the Health of Adults, the Population, and the Environment-conducted in 1998 by the Hennepin County Community Health Department and the Minneapolis Department of Health and Family Support in Minnesota.
Clinical research has led to tremendous improvements in treatment efficacy for most childhood cancers; overall 5-year survival is now greater than 75%. Long-term consequences of cure (i.e.
View Article and Find Full Text PDFJ Pediatr Psychol
August 2004
Objective: To explore parents' perceptions of the impact of type 1 diabetes mellitus (DM) on the family and to better understand parent-child conflict, parental worries, and coping strategies related to the management of DM in adolescence.
Methods: Semistructured interviews were conducted with the parents of 30 adolescent girls who had DM for at least 1 year. Using standard procedures for content analysis, themes were identified from the parents' discussions.
Few research studies have addressed the ways parents participate in their childs medical care, particularly in relation to the cancer experience. The purpose of this study was to explore parents descriptions of their participation in medical care for their children with cancer. For this study, seven focus groups were conducted with 45 parents of 26 children who had completed cancer treatment at least one year prior, and who were still alive.
View Article and Find Full Text PDFFamilies, as social systems, can be considered "resilient" in ways that parallel descriptions of individual resilience. In this article, the conceptualization of family-level outcomes as a prerequisite for assessing family competence, and hence their resilience, is presented relative to the unique functions that families perform for their members and for society. The risk and protective processes that give rise to resilience in families are discussed in terms of family stress and coping theory, with a particular emphasis on the family's subjective appraisal of their sources of stress and their ability to manage them.
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