The development of service user-led recommendations for health and social care services on leaving hospital with memory loss or dementia - the SHARED study.

Background: Health and social care services are under strain providing care in the community particularly at hospital discharge. Patient and carer experiences can inform and shape services.

Objective: To develop service user-led recommendations enabling smooth transition for people living with memory loss from acute hospital to community.

A SHARED study-the benefits and costs of setting up a health research study involving lay co-researchers and how we overcame the challenges.

Plain English Summary: In the United Kingdom (UK), official bodies such as the Department of Health and research funders such as the National Institute for Health Research support and encourage lay involvement in all stages of research studies. The SHARED study has had substantial patient and public involvement (PPI) from developing the idea to dissemination. The aim of the study has been to develop recommendations led by service users for health and social care professionals to use at hospital discharge and in care planning for people living with memory loss and their carers.