Publications by authors named "Jill C Handisides"
Article Synopsis
- The study aimed to evaluate health-related quality of life (HRQOL) in children and young adults with Marfan syndrome participating in a trial, using the Pediatric Quality of Life Inventory (PedsQL).
- Results showed that younger patients (5-18 years) had significantly lower HRQOL scores in both physical and psychosocial areas compared to healthy peers, while older patients (19-25 years) scored higher, indicating a shift in HRQOL with age.
- Factors like age, sex, and neurodevelopmental disorders were found to significantly impact HRQOL, whereas treatment type (atenolol vs. losartan) and physical severity of Marfan syndrome did not exhibit significant differences.
