uConsent: Addressing the gap in measuring understanding of informed consent in clinical research.

The purpose of this study was to establish the technical merit, feasibility, and generalizability of a new measure of understanding of informed consent for use with clinical research participants. A total of 109 teens/young adults at a large, pediatric medical center completed the consenting process of a hypothetical biobanking study. Data were analyzed using a combination of classical and modern theory analytic methods to produce a final set of 19 items referred to as the uConsent scale.

Impact of brachial plexus birth injury on health-related quality of life in adulthood: a mixed methods survey study.

Purpose: To describe the scope and nature of health concerns, functional impairments, and quality of life issues among adults with brachial plexus birth injury (BPBI).

Methods: A mixed methods study was conducted by surveying two social media networks of adults with BPBI using a combination of closed-ended and open-ended questions regarding the role of BPBI on ones' health, function, and quality of life. Closed-ended responses were compared across ages and genders.

Use of supported standing in males with Duchenne muscular dystrophy: Individual and family perspectives.

Purpose: This study aimed to explore stander use in individuals with Duchenne Muscular Dystrophy (DMD).

Methods: This mixed method research study employed a survey with categorical and open-ended questions related to stander use. Categorical responses were analyzed quantitatively.

Evaluation of a Grip-Strengthening Algorithm for the Initial Treatment of Chronic, Nonspecific Wrist Pain in Adolescents.

Purpose: Chronic, nonspecific wrist pain in adolescents can be challenging to assess and treat. We hypothesized that an algorithmic approach beginning with grip strengthening can alleviate pain, improve function, and identify patients in need of further intervention.

Methods: We retrospectively reviewed the results of a grip-strengthening protocol for adolescents with chronic, nonspecific wrist pain.

Pediatric hand therapists' experiences with outcomes measurement: An interpretive descriptive study.

Background: Demonstrating that pediatric hand therapy patients are achieving improved functional and health status outcomes is critical as reimbursement for therapy services shifts to value-based reimbursement. Yet, practice patterns of outcomes assessment in pediatric hand therapy are unknown.

Purpose: Explore how pediatric hand therapists describe their experience measuring treatment outcomes and using patient reported outcome measures (PROMs).

ICF linking of patient-reported therapy goals for children with acquired upper extremity impairment.

Background: Patient reported outcome measures are used to evaluate hand therapy outcomes. Yet, limited evidence is available regarding the outcomes children desire from hand therapy.

Purpose: To determine the desired treatment outcomes of children with acquired upper extremity impairments.

A psychometric comparison of patient-reported outcome measures used in pediatric hand therapy.

Study Design: Retrospective case series.

Introduction: Patient-reported outcome measures are important for research and also for informing clinical practice. The Pediatric Outcomes Data Collection Instrument (PODCI) and the Canadian Occupational Performance Measure (COPM) are commonly used in pediatric hand therapy.