Publications by authors named "Jen Hall"

Objective: Citizen science with young people is becoming increasingly popular, and understanding their experience is valuable as it can improve research through improved participant motivation/ retention, alongside greater insight. The participants can benefit through opportunities to improve self-efficacy, learning, communication, and relationships. However, studies that explore young people's experience of participating in citizen science have not been synthesised.

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Purpose: Hope is important in serious illnesses, as it has been linked to patient quality of life. We aimed to determine factors associated with lower hope scores among patients with central nervous system disease or bone metastases.

Methods And Materials: The Adult Dispositional Hope Scale (AHS) is a 12-item questionnaire that measures hope through 2 qualities: agency (goal-directed energy) and pathways (plan to meet goals).

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Purpose: After treating many adopted patients with congenital colorectal conditions, our goal was to understand if parents were properly counseled about their child's medical needs before adoption.

Methods: A comprehensive questionnaire was developed. Recruitment occurred by social media and colorectal database.

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Background: Community advisory committees (CACs) increasingly are formed to cultivate partnerships between researchers and communities.

Objectives: This article details the processes used to recruit CAC members, the purpose and structure of the committees, members' motivation to participate, and examples of member input and influence.

Methods: In-depth interviews, meeting notes, and partners' reflections were synthesized to identify key lessons regarding establishing and sustaining effective CACs.

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