Publications by authors named "Jaqueline A French"
Article Synopsis
- The Epilepsy Foundation developed expert guidelines for rescue therapies for seizure clusters, and 79% of healthcare professionals agreed on these practices, addressing gaps in understanding and education about seizure clusters for patients and families.
- An online survey of 176 people, including those with epilepsy and their caregivers, assessed their agreement with the preferred practices, revealing a similarity in consensus levels with healthcare professionals.
- While there was strong agreement on individualized seizure action plans and the need for enhanced education on rescue therapies, participants had differing views on various practices and did not reach consensus on a definition for seizure clusters.
Background: Some of the most difficult issues in the care of people living with epilepsy (PWE) regard the definition, treatment, and communication of unexpected increase(s) in seizure frequency over a relatively short duration of time. In order to address this issue, the Epilepsy Foundation established the Rescue Therapy Project in Epilepsy to understand the gaps, needs, and barriers facing people with epilepsy who use or may benefit from rescue therapies (RTs) for "seizure clusters". The intent was to provide consensus-derived recommendations from a broad stakeholder group including PWE, their caregivers, epilepsy specialist physicians, nurses, pharmacists, and representatives of epilepsy & neurology advocacy and professional organizations.
View Article and Find Full Text PDFThe Epilepsy Innovation Institute (Ei) is a new research program of the Epilepsy Foundation designed to be an innovation incubator for epilepsy. Ei research areas are selected based on community surveys that ask people impacted by epilepsy what they would like researchers to focus on. In their 2016 survey, unpredictability was selected as a top issue regardless of seizure frequency or severity.
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