Satisfaction and perceptions of research participants in clinical and translational studies: An urban multi-institution with CTSA.

Purpose: To examine research participants' levels of satisfaction and perceptions and aid researchers to better engage research volunteers from all racial and ethnic populations in clinical trials. A participant satisfaction survey was developed that focused on three domains to reflect satisfaction with delivery of care, environment, and center operations. In addition, the survey contained open-ended questions to reflect overall experiences and perceptions.

Attitudes and experiences regarding genetic research among persons of African descent.

Minorities are underrepresented in genetic research. This study examined the attitudes, experiences, and willingness of persons of African descent related to participation in genetic research. A total of 272 persons of African descent completed a questionnaire about attitudes and experiences associated with genetic research.

Culturally Competent Strategies for Recruitment and Retention of African American Populations into Clinical Trials.

Purpose: To identify successful recruitment strategies, challenges and best practices for researchers to engage African American communities in clinical studies taken into consideration target participants' culture and context.

Methods: We reviewed 50 studies conducted from 2001 to 2012 at an inner-city research center to determine the type, duration, anticipated enrollments and actual enrollments. Survey was sent to study coordinators to obtain data on recruitment and retention strategies, challenges and dropout rates.

Ethnic-based differences in the association of self-perceived health status and doctor's office utilization: Longitudinal Study on Aging.

Background: The purpose of this study was to determine whether self-perceived health status is predictive of a doctor's office visit in the Longitudinal Study on Aging (LSOA).

Methods: This was a population-based longitudinal study of persons aged ≥70 years who participated in the Study on Aging in 1984 and a follow-up survey of the LSOA in 1986. The cohort for the study consisted of 560 blacks and 6880 whites who were 70 years or older in 1984.