Publications by authors named "Jane Ormerod"
Article Synopsis
- - Adaptive pacing (AP) helps individuals with chronic health issues, like myalgic encephalomyelitis/chronic fatigue syndrome and potentially long COVID, manage their energy and balance rest to avoid worsening symptoms.
- - A study explored patient experiences using the "PaceMe" app, which involved narrative interviews to gather insights on its benefits over 3-6 months.
- - Four main themes emerged from the study: effective management of post-exertional malaise (PEM), support from the app, validation of experiences, and a sense of control for users, showcasing the app's importance in long COVID rehabilitation.
Background: Patients, their family members and caregivers have firsthand experiences of living with or supporting someone living with a disease or medical condition. This knowledge by experience cannot be replaced by the knowledge acquired by clinicians, researchers, or other professionals through study and/or work. The Therapies for Long COVID in non-hospitalised individuals (TLC) research project was funded in the UK by the National Institute for Health and Care Research (NIHR) and UK Research and Innovation to investigate the impact of long COVID on affected individuals.
View Article and Find Full Text PDFIntroduction: Long COVID is a life-limiting condition that affects 65 million people worldwide. It devastates lives with uncertain illness trajectories, and yet, there are many research uncertainties as there is a lack of understanding of its causes, effective treatments and management plans. We set out to identify current research priorities for people with Long COVID, carers, healthcare professionals and researchers.
View Article and Find Full Text PDFBackground: The persistence of symptoms for ≥12 weeks after a COVID-19 infection is known as Long COVID (LC), a condition with unclear pathophysiology and no proven treatments to date. Living with obesity is a risk factor for LC and has symptoms which may overlap with and aggravate LC.
Methods: ReDIRECT is a remotely delivered trial assessing whether weight management can reduce LC symptoms.
Objectives: To explore the experience of accessing Long COVID community rehabilitation from the perspectives of people with Long COVID and general practitioners (GPs).
Design: Qualitative descriptive study employing one-to-one semistructured virtual interviews analysed using the framework method.
Setting: Four National Health Service Scotland territorial health boards.
Objectives: This study aimed to explore the perceptions and experiences of barriers and facilitators to accessing Long COVID community rehabilitation.
Design: We used a qualitative descriptive design over two rounds of data collection with three participant groups: (1) people with experience of rehabilitation for Long COVID (PwLC); (2) National Health Service (NHS) staff delivering and/or managing community rehabilitation services (allied health professionals (AHPs)) and (3) NHS staff involved in strategic planning around Long COVID in their health board (Long COVID leads).
Setting: Four NHS Scotland territorial health boards.
Article Synopsis
- The ReDIRECT trial aims to see if a remote weight management program, called Counterweight-Plus, can alleviate Long COVID symptoms in individuals with overweight or obesity.
- It involves 240 participants randomly assigned to either receive usual care or the Counterweight-Plus program for a duration of 12 weeks, focusing on diet replacement and weight loss maintenance.
- The study includes a personalized approach where participants choose their main Long COVID symptom to track over six months and utilizes various recruitment methods, with results to be published after analysis.
Background: Controversy over treatment for people with myalgic encephalomyelitis/chronic fatigue syndrome (ME/CFS) is a barrier to appropriate treatment. Energy management or pacing is a prominent coping strategy for people with ME/CFS. Whilst a definitive definition of pacing is not unanimous within the literature or healthcare providers, it typically comprises regulating activity to avoid post exertional malaise (PEM), the worsening of symptoms after an activity.
View Article and Find Full Text PDFPatient and public involvement and engagement (PPIE) can provide valuable insights into the experiences of those living with and affected by a disease or health condition. Inclusive collaboration between patients, the public and researchers can lead to productive relationships, ensuring that health research addresses patient needs. Guidelines are available to support effective PPIE; however, evaluation of the impact of PPIE strategies in health research is limited.
View Article and Find Full Text PDFObjective: To describe the development and validation of a novel patient reported outcome measure for symptom burden from long covid, the symptom burden questionnaire for long covid (SBQ-LC).
Design: Multiphase, prospective mixed methods study.
Setting: Remote data collection and social media channels in the United Kingdom, 14 April to 1 August 2021.