Training parents of children with life-long and life-limiting conditions in the art of massage.

The aim of this study was to explore the experience of being a massage therapist on the Training and Support Programme (TSP) in relation to Continued Professional Development (CPD). The TSP instructs parents caring for children with life-long and life-limiting conditions in simple massage techniques. Data were collected by semi-structured interviews with six massage therapists who had worked on the TSP for between 112 and 4 years.

Psychosocial well-being of parents of children with ataxia who attended the Training and Support Programme: a 12-month follow-up.

The aim of this study was to investigate the impact of a Training and Support Programme (TSP) for parents of children with ataxia, 12 months after commencing the programme. The TSP provides instruction in basic massage to parents of children with disability and life limiting conditions. Questionnaires were mailed at 12-month follow-up to 27 parents who had completed a questionnaire at 4-month follow-up.

Living with haemophilia and von Willebrand's: a descriptive qualitative study.

Objective: The aim of this qualitative descriptive study was to describe the experience of living with bleeding disorders and to identify the associated salient issues from the perspectives of people living with haemophilia or von Willebrand's Disease (vWD).

Methods: Nine members of The Haemophilia Society took part in a semi-structured interview. The interviews were tape recorded and transcribed and the results subjected to thematic content analysis.