How to prevent and address safeguarding concerns in global health research programmes: practice, process and positionality in marginalised spaces.

Safeguarding is rapidly rising up the international development agenda, yet literature on safeguarding in related research is limited. This paper shares processes and practice relating to safeguarding within an international research consortium (the ARISE hub, known as ARISE). ARISE aims to enhance accountability and improve the health and well-being of marginalised people living and working in informal urban spaces in low-income and middle-income countries (Bangladesh, India, Kenya and Sierra Leone).

Quality of life of patients with spinal muscular atrophy: A systematic review.

Objectives: To systematically review the literature of quality of life (QoL) of patients with spinal muscular atrophy (SMA), a rare, autosomal-recessive neuromuscular disease associated with extensive morbidity and elevated mortality.

Methods: We searched Embase, Web of Science, and PubMed for full-text, English-language articles (published between January 1, 2000 and July 31, 2018) reporting results from studies of QoL of patients with SMA. We excluded review and editorial articles, studies reporting results for samples comprising <5 patients (to allow for meaningful inference), and case reports/qualitative assessments.

Health-Related Quality of Life in Patients with Adult-Onset Myotonic Dystrophy Type 1: A Systematic Review.

Background: Adult-onset myotonic dystrophy type 1 (DM1) is a chronic, multisystem disorder that leads to disability and premature death.

Objectives: The objective of our study was to conduct a systematic literature review of the health-related quality of life (HRQoL) of patients with DM1.

Methods: We searched Embase, Web of Science, and PubMed for English language full-text articles reporting results from studies of HRQoL in patients with adult-onset DM1 published between 1 January 2000 and 21 February 2018.

Content-Adaptive Memory for Viewer-Aware Energy-Quality Scalable Mobile Video Systems.

Mobile devices are becoming ever more popular for streaming videos, which account for the majority of all data traffic on the internet. Memory is a critical component in mobile video processing systems, increasingly dominating power consumption. Today, memory designers are still focusing on hardware-level power optimization techniques, which usually come with significant implementation cost (e.

Duchenne muscular dystrophy and caregiver burden: a systematic review.

Aim: To conduct a systematic literature review of caregiver burden in Duchenne muscular dystrophy (DMD).

Method: We searched Embase, Web of Science, and PubMed for full-text articles reporting results from studies of caregiver burden in DMD.

Results: We identified 483 unique publications.