Publications by authors named "J Jarrell"
Article Synopsis
- Diverse genetic respiratory disorders can lead to severe pulmonary hypertension (PH) in newborns, but there are still many unresolved questions about the best ways to diagnose and manage these conditions for better long-term results.
- A multidisciplinary team of pediatric specialists has come together to tackle the current challenges in clinical approaches and support for families of infants with developmental lung disease (DEVLD).
- The review discusses the clinical features of infants with DEVLD/DEVLD-PH, highlights decision-making complexities such as genetic testing and imaging, and stresses the need for teamwork, communication, and comprehensive counseling for families.
Pediatric home-based hospice and palliative care is a growing and important sub-field within the larger pediatric palliative care landscape. Despite research demonstrating the clinical and systemic efficacy of pediatric home-based hospice and palliative care, there remain barriers to its optimal development, implementation, and dissemination as well as best clinical practice knowledge gaps. This case series presents specific examples of ubiquitous challenges in pediatric home-based hospice and palliative care in hopes of guiding future research, education, advocacy, and program development efforts.
View Article and Find Full Text PDFContext: Studies suggest the feasibility and acceptability of telehealth in outpatient pediatric palliative care. However, there is a need for data that describes the implementation and quality of telehealth, relying on objective and validated measures.
Objective: We sought to compare the provision of pediatric palliative care by delivery method.
Objective: To provide evidence-based recommendations for the management of chronic pelvic pain in females.
Target Population: This guideline is specific to pelvic pain in adolescent and adult females and excluded literature that looked at pelvic pain in males. It also did not address genital pain.