Publications by authors named "J Gelfand"
Background And Objectives: Neurosarcoidosis poses a diagnostic and management challenge due to its rarity, phenotypic variability, and lack of randomized controlled studies to guide treatment selection. Recommendations for management based on expert opinion are useful in clinical practice and provide a framework for designing prospective studies.
Methods: In this Delphi survey study, specialists with experience in managing patients with neurosarcoidosis were invited to anonymously complete 2 surveys about key elements of evaluation, diagnosis, treatment, monitoring, and long-term management of neurosarcoidosis.
Importance: Cutaneous chronic graft-vs-host disease (GVHD) is independently associated with morbidity and mortality after allogeneic hematopoietic cell transplant. However, the health-related quality-of-life (HRQOL) domains that are most important to patients are poorly understood.
Objective: To perform a concept elicitation study to define HRQOL in cutaneous chronic GVHD from the patient perspective and to compare experiences of patients with epidermal vs sclerotic disease.
The FORWARD Psoriasis Registry: Patient-Reported Outcomes in a Novel Psoriasis Registry and Comparison of Traditional, Dermatologist-Led Enrollment With Web-Based Patient Enrollment.
J Psoriasis Psoriatic Arthritis
November 2024
Article Synopsis
- The FORWARD Psoriasis Registry aims to gather real-world evidence on psoriasis by collecting patient-reported data independent of clinicians.
- The study compares characteristics and treatment outcomes of two groups: those enrolling through a clinician and those self-enrolling online.
- Results showed significant differences between the two groups in disease burden and treatment satisfaction, indicating the importance of diverse data collection methods for understanding psoriasis.
Article Synopsis
- The skin and cardiovascular systems are interconnected, with various cardiovascular diseases linked to specific skin manifestations.
- Inflammatory skin conditions, like psoriasis, can lead to serious cardiovascular and metabolic health issues, while some cardiovascular medications may cause adverse skin reactions.
- This review emphasizes the importance of integrating dermatology and cardiology insights for effective diagnosis and management of patients experiencing both skin and cardiovascular problems.