Publications by authors named "J Cadwgan"
Article Synopsis
- The FEEDS study aimed to improve feeding methods for children with neurodisabilities and EDSD, gathering insights from healthcare professionals and parent carers to design an effective intervention toolkit.
- Survey data was collected from a variety of healthcare professionals and categorized by the child’s main diagnosis, showing that many interventions are commonly used across different conditions, but some are preferred for specific diagnoses.
- The findings indicate that interdisciplinary collaboration is vital in managing EDSD, as intervention choices are not heavily influenced by a child's diagnosis but rather by their unique circumstances.
UK research priority setting for childhood neurological conditions.
Dev Med Child Neurol
December 2024
Aim: To identify research priorities regarding the effectiveness of interventions for children and young people (CYP) with childhood neurological conditions (CNCs). These include common conditions such as epilepsies and cerebral palsy, as well as many rare conditions.
Method: The National Institute for Health and Care Research (NIHR) and the James Lind Alliance (JLA) champion and facilitate priority setting partnerships (PSPs) between patients, caregivers, and clinicians (stakeholders) to identify the most important unanswered questions for research (uncertainties).
Aims: Reimers migration percentage (MP) is a key measure to inform decision-making around the management of hip displacement in cerebral palsy (CP). The aim of this study is to assess validity and inter- and intra-rater reliability of a novel method of measuring MP using a smart phone app (HipScreen (HS) app).
Methods: A total of 20 pelvis radiographs (40 hips) were used to measure MP by using the HS app.
Aim: To determine whether a wrist-worn triaxial accelerometer-based device and software (including smartphone application), incorporating feedback, is feasible, acceptable, and can lead to increased affected upper limb use during everyday activities in children with unilateral cerebral palsy (UCP).
Methods: Mixed methods proof of concept study. Children aged 8-18 years with UCP; age-matched typically developing controls ("Buddies"), therapists.
Background: Young children with neurodisability commonly experience eating, drinking and swallowing difficulties (EDSD). Little is documented about which interventions and outcomes are most appropriate for such children. We aimed to seek consensus between parents of children with neurodisability and health professionals on the appropriate interventions and outcomes to inform future clinical developments and research studies.
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