Publications by authors named "J A C Rietjens"
Objectives: This systematic review examines how design methodologies support Shared Decision Making (SDM), identifies the most suitable for future use, explores types of methodologies used, challenges faced, and the impact on patients, clinicians, and care pathways.
Methods: Studies were searched on Medline, Web of Science, Scopus and grey literature (Google Scholar, CORDIS) up to July 2024, following PRISMA guidelines.
Results: were analysed to identify patient involvement, design strategies, SDM solutions, and their impact on care paths, professionals, and patients.
Article Synopsis
- Explicit end-of-life discussions are rare in Confucian-influenced Asian societies, making culturally sensitive advance care planning challenging, especially with the important role of families in decision-making.
- A Delphi study involving 115 multidisciplinary experts from five Asian regions aimed to create a consensus definition of advance care planning and provide practical recommendations for a patient-centered and family-based approach.
- The proposed definition emphasizes identifying personal values and preferences for future medical care while engaging family and healthcare providers, with high agreement on various recommendations that can inform practices, education, and policies for culturally relevant care in Asia.
Article Synopsis
- The study investigates how patients with advanced cancer cope over time, aiming to improve supportive care by understanding their coping strategies.
- Data from 675 patients across six European countries were analyzed, using questionnaires to track Denial, Acceptance, and Problem-Focused coping over 20 weeks.
- Findings showed that while most coping strategies remained stable, different subgroups of patients exhibited varying trajectories in their coping methods.
Article Synopsis
- The study focuses on stage I and II melanoma survivors to understand their experiences and survivorship care needs after treatment, highlighting the lack of research in this area despite the rising incidence of localized melanoma.
- The qualitative research involved 18 survivors divided into focus groups, revealing that they experienced significant emotional and physical challenges after treatment, alongside a mix of relief and fear as they navigated life post-diagnosis.
- Survivors emphasized the need for tailored information, accessible resources, and ongoing, patient-centered support to help them adjust and improve their quality of life after melanoma treatment.