Publications by authors named "Itzel A Camarillo"
Article Synopsis
- The study focuses on the impact of disclosing the APOE ε4/ε4 genotype on Alzheimer's disease risk among Latino participants in the IDEAL study, which addresses a gap in previous research that often excluded ethnic minorities.
- Participants attended genetic counseling sessions, where they learned about their genetic risk and prevention strategies, revealing a 55% risk by age 85 for ε4 homozygotes.
- Overall, the participants showed limited emotional reactions, with many expressing surprise but valuing the information as it helped them understand their Alzheimer's risk and ways to manage it.
Introduction: The (IDEAL) Study is a randomized clinical trial investigating the psychosocial, behavioral, and cognitive impacts of apolipoprotein E () genotype disclosure for late-onset Alzheimer's disease (AD) among Latinos.
Methods: We used address-based sampling to recruit English- and Spanish-speaking Latinos aged 40-64 living in northern Manhattan for a community-based Baseline Survey about their knowledge and opinions about AD. Participants eligible for the clinical trial were invited to complete an Introductory Session, including AD and genetics education and informed consent, before undergoing genotyping for .
Article Synopsis
- The paper investigates how individuals with epilepsy define and experience "control" regarding their condition, particularly focusing on seizure management and psychosocial effects.
- It analyzes interviews with 64 adults living with epilepsy, highlighting that their experiences of illness intrusiveness extend beyond just the frequency and severity of seizures.
- The findings reveal that anxiety and social challenges significantly affect the quality of life for people with epilepsy, suggesting that future care should adopt a holistic approach to improve their overall well-being and perceived control.
Article Synopsis
- - The study aimed to investigate epilepsy genetic knowledge and beliefs among Hispanics in comparison to non-Hispanics, given that Hispanics face healthcare access challenges, especially in epilepsy care.
- - Researchers surveyed 641 adults with epilepsy, revealing that while general beliefs about genetics were similar between the two groups, Hispanics scored lower in epilepsy-specific genetic knowledge.
- - The findings highlight a need for improved education on epilepsy genetics within Hispanic communities to better understand risks and family history related to the condition.
Article Synopsis
- The study examined how patients' perceptions of their epilepsy impact their adherence to antiseizure medication (ASM).
- Surveys from 644 adult patients revealed that while 23% exhibited high medication adherence, various perceptions influenced this adherence, such as understanding epilepsy, which increased adherence, and the emotional impact of epilepsy, which decreased it.
- Overall, greater understanding of epilepsy was linked to better adherence, while factors like depression and anxiety affected the relationship between the perceived impact of epilepsy and medication compliance.
Objective: This study addresses the contribution of genetics-related concerns to reduced childbearing among people with epilepsy.
Methods: Surveys were completed by 606 adult patients with epilepsy of unknown cause at our medical center. Poisson regression analysis was used to assess the relations of number of offspring to: (1) genetic attribution (GA: participants' belief that genetics was a cause of their epilepsy), assessed via a novel scale developed from four survey items (Cronbach's alpha = .