Background: Effective training of health professionals is essential to end-of-life care.
Aims: To explore the level of knowledge on paediatric palliative care (PPC) of nurses in a children's monographic hospital.
Methods: Cross-sectional observational analytical study.
Context: The subcutaneous route is a useful alternative for drug administration in palliative care. Although there is scientific evidence on its use in adult patients, the literature in pediatric palliative care is almost nonexistent.
Objectives: To describe the experience of a pediatric palliative care unit (PPCU) with in-home subcutaneous drug administration symptom control.
Context: Off-label and unlicensed use of drugs is a widespread practice in pediatric care because of the lack of specific efficacy and safety data and the absence of formulations adapted to the needs of these individuals. Pediatric patients with a life-limiting illness frequently receive drugs under these conditions, although no studies have established the prevalence of this practice.
Objectives: To describe the prevalence, indications, and most common uses of off-label and unlicensed drugs in a pediatric palliative care unit (PPCU).