Publications by authors named "I van der Mei"
Objectives: Studies have shown that people living with multiple sclerosis (PwMS) were substantially impacted by the COVID-19 pandemic. However, no study has compared the overall health-related quality of life impact of the COVID-19 pandemic on PwMS and the general population. Differences would have implications for crises/pandemic management policies.
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- Multiple sclerosis (MS) significantly impacts health economics, particularly due to the often-overlooked costs of informal caregiving, leading to limited data for decision-making among policymakers.
- This review synthesized global evidence on the economic burden of informal care for MS, analyzing 61 relevant studies across 25 countries and calculating the average annual cost of informal care at approximately USD $6,308 per person.
- Findings reveal that informal care costs escalate with the severity of MS disability and vary by country income level, emphasizing the need for these costs to be integrated into health economics models for better reimbursement decisions regarding MS care.
Purpose: Many people living with multiple sclerosis (PwMS) experience poor sleep, which is associated with diminished overall health-related quality of life (HRQoL). We quantified associations between sleep quality and HRQoL domains and examined the extent to which other MS symptoms could account for these associations.
Methods: In this cross-sectional survey of 1,717 Australians with MS, we used Assessment of Quality of Life (AQoL) 8D and Pittsburgh Sleep Quality Index (PSQI) to assess HRQoL and sleep quality, respectively.
Objectives: Subjective wellbeing has been defined as an individual's personal appraisal of their quality of life. Subjective wellbeing is associated with positive health behaviours and improved coping abilities. This study aimed to investigate the subjective wellbeing of people living with multiple sclerosis (MS), using the novel Personal Wellbeing Index, and make comparisons with the general population.
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