Publications by authors named "I Shoulson"
What Parkinson's disease patients say in their own words about their mood and anxiety symptoms.
Parkinsonism Relat Disord
January 2025
Article Synopsis
- - The study aimed to gather insights from Parkinson's Disease (PD) patients on their mood and anxiety issues by analyzing data from the Parkinson's Disease Patient Report of Problems (PD-PROP).
- - Data from over 21,000 participants revealed four key categories of non-depressive mood symptoms related to PD, with findings indicating women report these symptoms more frequently, and the issues of loneliness and isolation tend to increase as the disease progresses.
- - The research suggests that healthcare providers should pay closer attention to mood-related problems, especially anxiety, loneliness, and negative emotions in female PD patients and those with longer disease duration.
Background And Objectives: Cognitive impairment is experienced by up to 80% of people with Parkinson disease (PD). Little is known regarding the subjective experience and frequency of bothersome cognitive problems across the range of disease duration as expressed directly in patients' own words. We describe the types and frequency of bothersome cognitive symptoms reported verbatim by patients with PD.
View Article and Find Full Text PDFBackground: Direct-to-participant online reporting facilitates the conduct of clinical research by increasing access and clinically meaningful patient engagement.
Objective: We assessed feasibility of online data collection from adults with diagnosed Huntington's disease (HD) who directly reported their problems and impact in their own words.
Methods: Data were collected online from consenting United States residents who self-identified as 1) having been diagnosed with Huntington's disease, 2) able to ambulate independently, and 3) self-sufficient for most daily needs.
Parkinson's disease (PD) carries substantial psychosocial burden. Using a database of responses by people with PD reporting up to five "most bothersome problems," we identified 225 fear-based verbatims, which were organized using the framework method into 26 categories. Commonly-reported fears included uncertainty of progression (n = 60, 26.
View Article and Find Full Text PDFBackground: Early identification of subjective cognitive complaints (SCC) in Parkinson's disease (PD) may improve patient care if it predicts cognition-related functional impairment (CFI).
Objectives: The aim was to determine the cross-sectional and longitudinal association between SCC and CFI in PD.
Methods: Data were obtained from Fox Insight, an online longitudinal study that collects PD patient-reported outcomes.