Background: Future planning is a way of supporting people with intellectual disabilities and their families to think about their support needs as both groups age. Adults with intellectual disabilities, family members, and service providers are often involved in planning processes. However, it is unclear whose perspectives dominate in the literature and how these might vary.
View Article and Find Full Text PDFBackground: Little is known about the specific needs and experiences of individuals with long-standing physical disability at end of life.
Aim: To explore health and disability care providers perspectives and experiences in relation to end-of-life care needs of individuals with long-standing physical disability.
Design: Qualitative study using reflexive thematic analysis.
Background: Little is known about how older parent caregivers from culturally and linguistically diverse (CALD) backgrounds experience caring for their family member with intellectual disability into late life.
Method: In-depth semi-structured interviews were carried out with N = 19 family caregivers aged 50-91 from ten Italian and four Greek families. The Sociocultural Stress and Coping Model was used as a framework to interpret their experiences.