Publications by authors named "Holly DeLuca"
Article Synopsis
- The study aimed to examine the muscle properties, motor performance, and quality of life (QoL) in children with sickle cell disease (SCD) in comparison to healthy controls.
- It involved assessing various muscle attributes, such as knee strength and muscle thickness, alongside gross motor skills and QoL through tests and questionnaires.
- Results showed that children with SCD had significantly lower muscle strength, motor performance, and QoL, indicating the need for tailored physical therapy plans to address these challenges.
There is a long history of challenges when delivering care to adolescents and young adults (AYA) with chronic healthcare needs. For the AYA survivor of childhood cancer, these challenges may include complex medical care, a multitude of psychosocial issues and systemic barriers to care. Educating this population is critical as they assume age-appropriate responsibility for their health and become active partners in their survivorship care.
View Article and Find Full Text PDFBackground: Establishing the ability of children and adolescents with cancer to complete the NIH-sponsored PROMIS pediatric measures electronically and the preliminary validity estimates of the measures (both full item banks and short forms) in pediatric oncology will contribute to our knowledge of the impact of cancer treatment on these young patients.
Procedures: A total of 203 8- to 17-year olds were administered eight PROMIS pediatric measures in a cross-sectional study design to establish known-group validity. Of the 200 who completed all or most of the items, a slight majority were male (55.