Evaluation and Disposition of Fetal Myelomeningocele Repair Candidates: A Large Referral Center Experience.

Background: Fetal myelomeningocele (fMMC) repair yields superior outcomes to postnatal repair and is increasingly offered at select fetal centers.

Objectives: To report the fMMC referral process from initial referral to evaluation and surgical intervention in a large fetal referral center.

Methods: We conducted a retrospective cohort study of patients referred to Texas Children's Fetal Center for fMMC between September 2013 and January 2018, reviewing the process from referral to final disposition.

Family support and media considerations with conjoined twins.

Conjoined twins offer unique challenges for the family and medical care team including psychosocial stressors, religious dilemmas and public relation considerations. The involvement of social workers, child life specialists, chaplains and public relation experts is an important component in the care of conjoined twins. In this paper, we discuss the issues that could be encountered when supporting families with conjoined twins and strategies to address them.