Let Us Talk Treatment: Using a Digital Body Map Tool to Examine Treatment Burden and Coping Strategies Among Young People with a Chronic Condition.

Purpose: Treatment for a chronic condition can pose a heavy burden on young people and affect their quality of life. The present study examined young people's experiences with treatment burden and their coping strategies.

Patients And Methods: The body mapping method was employed, in which a life-sized outline of someone's body is traced and populated with visual representations, symbols and words.

Self-management of social well-being in a cross-sectional study among community-dwelling older adults: The added value of digital participation.

Background: This study aimed to examine associations between self-management abilities and digital participation among community-dwelling older adults with chronic conditions in the Netherlands.

Methods: The study utilized a cross-sectional design. Community-dwelling older adults were sampled from a Dutch nationwide panel study performed in October and November of 2019.

Lives on hold: A qualitative study of young refugees' resilience strategies.

Although the literature on positive adjustment following traumatic events is growing, only a few studies have examined this phenomenon in young refugees. Using the social-ecological framework, the aim of this study was to identify factors and processes that according to young refugees promote their resilience. A total of 16 treatment-seeking refugees aged 13-21 years, living in the Netherlands, were interviewed.

Why Do Women Not Use Preconception Care? A Systematic Review On Barriers And Facilitators.

Importance: Preconception care (PCC) has the potential to optimize pregnancy outcomes. However, awareness of PCC among the target population is generally limited, and the use of PCC remains low.

Importance: The objective of this study was to review the literature on women's perceptions regarding barriers and facilitators for the use of PCC.

A realist review: what do nurse-led self-management interventions achieve for outpatients with a chronic condition?

Aim: The aim of this study was to examine how nurse-led interventions that support self-management of outpatients with chronic conditions work and in what contexts they work successfully.

Background: Self-management could be directed at goals such as quality of life, adherence or patients' empowerment. Self-management support is an increasingly important task of nurses.

Frail Older Adults' Experiences With a Proactive, Nurse-Led Primary Care Program: A Qualitative Study.

The aim of the current study was to explore frail older adults' perceptions and experiences with a proactive, integrated nurse-led primary care program. A qualitative study nested within a randomized trial in primary care was conducted. In total, 11 semistructured interviews were conducted in a subsample of participants who received nurse-led care in the intervention group.

Between power and powerlessness: a meta-ethnography of sources of resilience in young refugees.

Objective: This article reviews available qualitative studies that report young refugees' ways of dealing with adversity to address their sources of resilience.

Design: We searched five electronic databases. Twenty-six empirical studies were included in the review.

Recording and accounting for stakeholder involvement in systematic reviews.

Objectives: The use of stakeholders in systematic reviews is increasingly valued, but their influence on the systematicity of the review is often unclear. The aim of this study was to describe some of the processes of involvement of stakeholders and to demonstrate a Tool for Recording and Accounting for Stakeholder Involvement (TRASI).

Methods: We demonstrate the TRASI in two worked examples.

Self-management support from the perspective of patients with a chronic condition: a thematic synthesis of qualitative studies.

Background: Receiving adequate support seems to be crucial to the success of self-management. Although different empirical studies separately examined patients' preferences for self-management support (SMS), an overview is lacking.

Objective: The aim of this qualitative review was to identify patients' needs with respect to SMS and to explore by whom this support is preferably provided.

Factors influencing acceptance of technology for aging in place: a systematic review.

Purpose: To provide an overview of factors influencing the acceptance of electronic technologies that support aging in place by community-dwelling older adults. Since technology acceptance factors fluctuate over time, a distinction was made between factors in the pre-implementation stage and factors in the post-implementation stage.

Methods: A systematic review of mixed studies.

Doctors' perceptions and use of evidence-based medicine: a systematic review and thematic synthesis of qualitative studies.

Purpose: Many primary qualitative studies of barriers and facilitators for doctors' use of evidence-based medicine (EBM) are available, but knowledge remains fragmented. This study sought to synthesize the results of these qualitative studies, taking the variability across context (i.e.

Bouncing forward of young refugees: a perspective on resilience research directions.

While studies on the consequences of trauma and forced migration on young refugees have focused mainly on their pathology, a focus on resilience in young refugees is needed to adequately represent their response to adversity and to help understand their needs. The aim of this article is to present a proposed study of resilience in young refugees which has been informed by an overview of achievements and challenges in the field of resilience. IN ORDER TO ADVANCE THE FIELD OF RESILIENCE, SEVERAL TOPICS NEED CLARIFICATION: definition and assessment of resilience, the relation of resilience to other constructs and the underlying biological and external factors influencing resilience.

Patients' views on changes in doctor-patient communication between 1982 and 2001: a mixed-methods study.

Background: Doctor-patient communication has been influenced over time by factors such as the rise of evidence-based medicine and a growing emphasis on patient-centred care. Despite disputes in the literature on the tension between evidence-based medicine and patient-centered medicine, patients' views on what constitutes high quality of doctor-patient communication are seldom an explicit topic for research. The aim of this study is to examine whether analogue patients (lay people judging videotaped consultations) perceive shifts in the quality of doctor-patient communication over a twenty-year period.

Supporting children after single- incident trauma: parents' views.

Objective: To strengthen trauma-informed health care by exploring parents' experiences of assisting their child after single-incident trauma (eg, violence, accidents, and sudden loss).

Method: Semistructured interviews with parents (N = 33) of 25 exposed children (8-12 years).

Results: Responsive parenting after trauma emerged as a core theme, consisting of (a) being aware of a child's needs and (b) acting on these needs.

Making a difference: towards a method for weighing the evidence in a qualitative synthesis.

Objectives: In a qualitative synthesis, primary qualitative studies are integrated to develop a theory or evidence-based interventions. Until now, the strength of the evidence in the primary studies has not been taken into account in the outcome of the qualitative synthesis. In this paper, a method is developed and evaluated to assign weights to the findings of the qualitative studies using both the frequency and the quality of the reported results.

Understanding the lack of understanding: invalidation from the perspective of the patient with fibromyalgia.

Objective: Patients with fibromyalgia have difficulty with the invisibility and medically unexplained character of the syndrome. Disbelief, lack of acceptance, and stigmatization by their spouse, family, colleagues, the health care system, and society are key issues in their lives. Nevertheless, the components of this phenomenon that we term "invalidation" are not clear.

Patients' explanations for unsuccessful weight loss after laparoscopic adjustable gastric banding (LAGB).

Objective: Not all morbidly obese patients attain sufficient weight loss after laparoscopic adjustable gastric banding (LAGB). We examined patients' explanations for unsuccessful weight loss and self-awareness regarding food intake.

Methods: Interviews with 11 patients (10 female/1 male; mean age 46 years) with unsuccessful weight loss were transcribed and analyzed with the MAXqda2 program.

Afghan refugees and their general practitioners in The Netherlands: to trust or not to trust?

In-depth interviews with Afghan refugees living in The Netherlands about their experience of healthcare, have led to a series of narratives. This article focuses on the relationship between the refugee-patients and their general practitioners (GPs) from the participants' point of view. It was possible to distinguish four different types of narrative, by analysing the individual interviews into critical episodes.

'It might happen or it might not': how patients with multiple sclerosis explain their perception of prognostic risk.

This qualitative study aimed to examine risk perception and seriousness of wheelchair dependence in patients with multiple sclerosis. Perceived absolute risk and perceived seriousness were assessed for 2-year, 10-year and lifetime prognosis of wheelchair dependence using visual analogue scales (VAS). In semi-structured interviews, patients (n = 85) were asked to elucidate these VAS scores.

Continuation of caregiving among partners who give total care to spouses with multiple sclerosis.

As is expressed in the term 'caregiving career', caregiving is a dynamic phenomenon. The present study addresses the total care phase in which spouses give direct and ongoing personal care to their partners with multiple sclerosis (MS). The dyadic nature of caregiving is stressed by examining the roles which both spouses play in establishing a commitment that results in the continuation of caregiving.

Encountering the downward phase: biographical work in people with multiple sclerosis living at home.

This qualitative study examines how individuals in an advanced stage of multiple sclerosis (MS) who live at home, accommodate to their illness. The downward phase in the illness trajectory of MS often consists of a lengthy period of gradual decline. According to Corbin and Strauss's framework, accommodation is conceptualized as biographical work that refers to the actions taken to retain control over the life course and to give life meaning again.