Publications by authors named "Harriet Nankya"
Article Synopsis
- Community engagement (CE) is crucial for maintaining ethical integrity in genetics and genomics research (GGR) but lacks sufficient guidelines, especially in Uganda.
- The study analyzes the experiences of GGR researchers, community members, and Research Ethics Committee (REC) members in Uganda to develop effective and ethical CE practices.
- Findings reveal that while CE is often initiated during the sample collection stage, there is a need for earlier involvement, increased budgeting for CE, and inclusion of genetic counselors to address social issues raised by GGR.
To attain effective community engagement (CE) for genetics and genomics research (GGR) is a challenge. This study aimed to analyzed participants' perspectives on how to attain effective CE for GGR in Uganda. A cross-sectional qualitative study involving in-depth interviews with twenty research ethics committee members and three national research regulators was conducted.
View Article and Find Full Text PDFBackground: Generally, there is unanimity about the value of community engagement in health-related research. There is also a growing tendency to view genetics and genomics research (GGR) as a special category of research, the conduct of which including community engagement (CE) as needing additional caution. One of the motivations of this study was to establish how differently if at all, we should think about CE in GGR.
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