Publications by authors named "H E Kerek-Bodden"

Background: In the German health care system, the participation of patients (patient representatives) and the consideration of their perspectives in all phases of research and care are being increasingly demanded. How appropriate patient participation (participation of patient representatives) can be designed is illustrated by the example of the project on the new form of care titled "Integrated, cross-sectoral psychooncology nVF-isPOI" and funded by the Innovation Fund at the Federal Joint Committee.

Method: The realization of patient (representative) participation is presented by the example of the isPO project, taking into account the short form of the Guidance for Reporting Involvement of Patients and the Public (GRIPP2).

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Article Synopsis
  • - This study aims to explore the similarities and differences in the emotional and practical challenges faced by caregivers of cancer patients, specifically parents, partners, and adult children, and their needs for peer support programs.
  • - Through semi-structured interviews with 30 family caregivers, researchers identified ten categories of burden, highlighting that partners mostly felt the strain of time, while parents and adult children experienced more emotional stress.
  • - All caregivers expressed a strong desire for peer support networks that would connect them with others in similar situations, emphasizing the importance of matching with peers who share comparable experiences to improve their support and coping mechanisms.
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Objective: As part of the Center for Competence Development in Cancer Self-Help at the University Medical Center Freiburg, an analysis of the need for training and education was conducted among the member organizations of the House of the Cancer Patient Support Associations of Germany (HKSH).

Methods: The online survey took place from February to April 2021 and was completed by functionaries at various organization levels and group members. In a questionnaire developed together with self-help representatives 19 potential training topics were ranked in terms of importance.

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Background: The annual incidence of new cancer cases has been increasing worldwide for many years, and is likely to continue to rise. In Germany, the number of new cancer cases is expected to increase by 20% until 2030. Half of all cancer patients experience significant emotional and psychosocial distress along the continuum of their disease, treatment, and aftercare, and also as long-term survivors.

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High-quality and user-friendly patient information material (PIM) is essential for understanding and accepting a new care programme. When optimising the PIM of the integrated, cross-sectoral psycho-oncological (isPO) care programme, the design of the fifth element of the patient information strategy-the patient-friendly website-was still pending. In this paper, the iterative design process of the patient-friendly isPO website is described.

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